You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

HERS Foundation

a/k/a: HERS


422 Bryn Mawr Avenue
Bala-Cynwyd, PA 19004





800 Number




Email Address


The HERS Foundation (Hysterectomy Educational Resources and Services)is a non-profit organization dedicated to the ideal that every woman should have complete, accurate information available to her about the alternatives to and consequences of hysterectomy. Established in 1982, HERS provides an initial free packet of information, counseling by telephone appointment, assistance in determining whether proper, complete evaluation of symptoms has been obtained, referral to physicians, and legal counseling as needed. HERS also networks women on a one-to-one basis worldwide. Educational materials include a newsletter, a resource list, and a HERS publication list. Translated versions are available as needed.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .