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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Neurofibromatosis Clinic at Texas Children's Hospital

a/k/a: NC

Address

6701 Fannin Street, #1560
Houston, TX 77030

Phone

832-822-4280

Fax

--

800 Number

800-364-5437

TDD

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Email Address

plunkett@bcm.edu

Website

http://www.texaschildrens.org/Locate/Departments-and-Services/Genetic-Disorders/Neurofibromatosis-Clinic/

The Neurofibromatosis Clinic (NC) at Texas Children's Hospital, a joint effort of the Department of Molecular and Human Genetics at Baylor College of Medicine and Texas Children's Hospital, is a multidisciplinary clinic in which patients are seen by physicians in the subspecialities of genetics, ophthalmology, dermatology, neurology, and neurosurgery. Patients are seen by the necessary subspecialist regarding any change in status and then referred on to a particular subspecialist for additional treatment as required. Patients with a diagnosis of Neurofibromatosis I, Neurofibromatosis II, Von Hippel Lindau, and Tuberous Sclerosis are all followed in the Neurofibromatosis Clinic. Case management and ongoing counseling are provided as well as new information concerning advances in treatment and testing for these disorders.

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