You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Neurofibromatosis Clinic at Texas Children's Hospital

a/k/a: NC


6701 Fannin Street, #1560
Houston, TX 77030





800 Number




Email Address


The Neurofibromatosis Clinic (NC) at Texas Children's Hospital, a joint effort of the Department of Molecular and Human Genetics at Baylor College of Medicine and Texas Children's Hospital, is a multidisciplinary clinic in which patients are seen by physicians in the subspecialities of genetics, ophthalmology, dermatology, neurology, and neurosurgery. Patients are seen by the necessary subspecialist regarding any change in status and then referred on to a particular subspecialist for additional treatment as required. Patients with a diagnosis of Neurofibromatosis I, Neurofibromatosis II, Von Hippel Lindau, and Tuberous Sclerosis are all followed in the Neurofibromatosis Clinic. Case management and ongoing counseling are provided as well as new information concerning advances in treatment and testing for these disorders.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .