You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

Patient Organizations Database

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

iFace

IgA Nephropathy Support Network

Ileostomy and Internal Pouch Support Group

Immune Deficiency Foundation

Immunization Action Coalition

Incontinentia Pigmenti International Foundation

Indian Health Service

Indoor Air Quality Information Clearinghouse

Infant Botulism Treatment and Prevention Program

Infants Remembered In Silence, Inc. (IRIS)

Infectious Diseases Society of America

Inflammatory Breast Cancer Research Foundation

Infogen AC

Information for Genetic Professionals

Initiative for Collective Neuronal Dynamics and Epilepsy

In Need of Diagnosis, Inc.

Institute for Families

Institute for Human Services/Helpline

Institute of Reconstructive Plastic Surgery (New York Medical University)

Instituto de Errores Innatos del Metabolismo

Intensive Caring Unlimited, Inc.

Intermountain PKU and Allied Disorders Association

International 22q11.2 Deletion Syndrome Foundation, Inc.

International Advocate For Glycoprotein Storage Diseases

International AIDS Society

International Alliance of ALS/MND Associations

International Alliance of Patients' Organizations

International Association for Food Protein Enterocolitis

International Association for Medical Assistance to Travellers

International Association for the Study of Pain

International Brain Tumour Alliance

International Bureau for Epilepsy

International Cancer Alliance for Research and Education (ICARE)

International Castleman's Disease Organization

International Center for Disability Resources on the Internet

International Center for Fabry Disease

International Children's Anophthalmia Network (ICAN)

International Costello Syndrome Support Group

International Cystinuria Foundation

International Diabetes Federation

International Disability Coalition

International Dyslexia Association

International Eosinophil Society, Inc

International Essential Tremor Foundation

International Fanconi Anemia Registry

International Federation for Spina Bifida and Hydrocephalus

International Federation of Marfan Syndrome Organizations (IFMSO)

International FH Foundation

International FOP Association

International Foundation for Autoimmune Arthritis

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .