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Coats Disease

Abstract

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NORD is very grateful to J. Michael Jumper, MD, Director, Retina Service and Sara J. Haug, MD, PhD, California Pacific Medical Center, West Coast Retina Medical Group, for assistance in the preparation of this report.

Synonyms of Coats Disease

  • Coats syndrome
  • retinal telangiectasis

Disorder Subdivisions

  • No subdivisions found.

General Discussion

Coats disease was first described in 1908 and is a rare disorder characterized by abnormal development of the blood vessels in the retina. The retina is a nerve-rich tissue lining the back of the eye that transmits light images to the brain, which allows a person to see. Therefore affected individuals may experience loss of vision due to changes in the retina and, in severe cases, retinal detachment. In almost all cases of Coats disease, only one eye is affected. Rarely, both eyes may be exhibit symptoms however one eye is often affected more than the other. The specific cause of Coats disease is not known.

Coats Disease Resources

NORD offers an online community for this rare disease. RareConnect was created by EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders) to provide a safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources. You can view these international, rare disease communities at www.rareconnect.org.

NORD Member Organizations:

(To become a member of NORD, an organization must meet established criteria and be approved by the NORD Board of Directors. If you're interested in becoming a member, please contact Susan Olivo, Membership Manager, at solivo@rarediseases.org.)

Other Organizations:

The information in NORD’s Rare Disease Database is for educational purposes only. It should never be used for diagnostic or treatment purposes. If you have questions regarding a medical condition, always seek the advice of your physician or other qualified health professional. NORD’s reports provide a brief overview of rare diseases. For more specific information, we encourage you to contact your personal physician or the agencies listed as “Resources” on this report.

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