Other Sites of Interest
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GINAhelp.org provides an introduction to the Genetic Information Nondiscrimination Act and its protections in health insurance and employment. It includes answers to common questions about GINA and examples to help you learn.
The National Coalition for Health Professional Education in Genetics put together a Discussion Guide for Clinicians on The Genetic Information Nondiscrimination Act (GINA).
The American Bar Association’s Commission on Mental and Physical Disability Law’s mission is "to promote the ABA's commitment to justice and the rule of law for persons with mental, physical, and sensory disabilities and to promote their full and equal participation in the legal profession."
The Disability Rights Education and Defense Fund is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development.
The Patient Advocate Foundation provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
The Jennifer Jaff Center, Inc. provides patients with free information, advice and advocacy services in areas including but not limited to the following: how to get your own medical records, how to get and keep health insurance, how to get health insurance coverage for particular treatments, drugs, and/or therapies, how to assert your rights under the Americans with Disabilities Act and the Family and Medical Leave Act, and how to ensure that schools accommodate students with chronic illnesses.
The US Congress and Health Policy site provides an overview of how Congress functions and its role in shaping health policy. The site is one of KaiserEDU's tutorials, which are multimedia presentations on health policy issues, research methodology or the workings of government.
Public Opinion and Health Care Policy looks at public opinion of the delivery and financing of healthcare. The site is one of KaiserEDU's tutorials, which are multimedia presentations on health policy issues, research methodology or the workings of government.
Global Health 101 provides an overview of global health. The site is one of KaiserEDU's tutorials, which are multimedia presentations on health policy issues, research methodology or the workings of government.
The National Women's Health Network improves the health of all women by developing and promoting a critical analysis of health issues in order to affect policy and support consumer decision-making.
The Society for Women's Health Research is a national non-profit organization based in Washington DC, is widely recognized as the thought leader in research on sex differences and is dedicated to improving women’s health through advocacy, education, and research.
The National Clearinghouse for Long-Term Care Information website was developed by the U.S. Department of Health and Human Services to provide information and resources to help you and your family plan for future long-term care (LTC) needs.
The Home Health Agency Center is a resource provided by Centers for Medicare & Medicaid Services (CMS).
Rare Diseases and Scientific Inquiry, for grades 6-8, helps students explore how scientists research rare diseases and treatments and learn more about the workings of the human body. This is part of the NIH Curriculum Supplement Series.
Evolution and Medicine, for grades 9-12, helps students use scientific inquiry in the context of medicine to understand evolutionary principles. Students will learn how evolution is part of our knowledge of human health, biomedical processes, and disease treatment. This is part of the NIH Curriculum Supplement Series.
The FDA developed a webinar series about rare disease issues. Their goal is to make these educational resources accessible to a broad audience.