Research

Funding Opportunities From NORD Member Organizations

NORD's member organizations are invited to post information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP.

NORD member organizations may submit copy for this page to webmaster@rarediseases.org. All entries should be submitted in the format used below.

SAMPLE Member Organization RFP:

Caring FOR Carcinoid Foundation
One Kendall Square
PMB 180
Cambridge, MA 02139
Phone: 857-222-5492
E-mail: research@caringforcarcinoid.org
Web: www.caringforcarcinoid.org

Disease name: Carcinoid
Amount: up to $X,XXX per year
Length of study: X years
Letter of Intent deadline: Month Date, Year, Time
Application deadline: Month Date, Year, Time
Guidelines and application: www.caringforcarcinoid.org/research/grantsavailable.asp

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National MPS Society
4220 NC Highway 55, Suite 140
Durham, NC 27713
Phone: 919.806.0101
Fax: 919.806.2055
Web: www.mpssociety.org

Funding is available for five general MPS grants
Amount: $30,000 per year per grant (total direct costs only)
Length of Study: 2 years
Letter of Intent deadline: March 17, 2008
Application deadline: May 1, 2008
Guidelines: www.mpssociety.org

Funding is available for two MPS II grants
Amount: $32,500 per year per grant (total direct costs only)
Length of Study: 2 years
Letter of Intent deadline: March 17, 2008
Application deadline: May 1, 2008
Guidelines: www.mpssociety.org

Funding is available for one MPS III grant
Amount: $30,000 per year (total direct costs only)
Length of Study: 2 years
Letter of Intent deadline: March 17, 2008
Application deadline: May 1, 2008
Guidelines: www.mpssociety.org

Foundation for Ichthyosis & Related Skin Types, Inc.
1364 Welsh Rd, G2
North Wales, PA 19454
Web: www.scalyskin.org
E-mail: info@scalyskin.org

Disease Name: Ichthyosis and Related Skin Types
Amount: $25,000 to 50,000 for Ichthyosis Related or $75,000 for EHK, Lamellar/CIE
Letter of Intent deadline: February 25, 2008
Application deadline: April 4, 2008
Award Announcement: June 30, 2008
Funds Available: September 1, 2008

National Tay-Sachs & Allied Diseases Association
2001 Beacon St. – Suite 204
Boston, MA 02135
Phone: 617-277-4463
E-mail: skahn@ntsad.org
Web: www.ntsad.org

Disease names: Lysosomal storage disorders affecting CNS and pediatric leukodystrophies
Amount: $30,000 - $45,000
Length of study: 1 year
Application deadline: February 29, 2008
Guidelines: www.ntsad.org

National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
Phone: (516) 883-8712 ext. 17
Fax: (516) 883-8040
Web: www.marfan.org
E-mail: research@marfan.org

Disease Name: Marfan Disease
Amount: $50,000 one-year grants or $100,000 two-year grants
Submission Deadline: April 1, 2008
Award Announcement: October 1, 2008
Funds Available: January 1, 2009

Melorheostosis Association
410 East 50th Street
New York, NY 10022
Web: www.melorheostosis.org
E-mail: ResearchGrant@melorheostosis.org

Disease Name: Melorheostosis
Amount: up to $30,000 per year
Length of Study: 1 year
Letter of Intent Deadline: May 1, 2008
Application Deadline: June 1, 2008
Guidelines and Application: www.melorheostosis.org

Benign Essential Blepharospasm Research Foundation, Inc.
P.O. Box 12468
Beaumont, TX 77726-2468
Phone: (409) 832-0788
Fax: (409) 832-0890
Web: www.blepharospasm.org
E-mail: bebrf@sbcglobal.net

Disease Name: Benign Essential Blepharospasm and Meige
Amount: up to $150,000
Length of Study: 1 year
Application Deadline: July 1, 2008
Protocol Guidelines: www.blepharospasm.org

Cicatricial Alopecia Research Foundation
P.O. Box 64158
Los Angeles, CA 90064
Phone: (310)475-2419
E-mail: research@carfintl.org
Web site: www.carfintl.org

Disease name: Cicatricial Alopecia
Amount: $5000 up to $20,000
Length of study: for up to 2 years MAX
Letter of Intent deadline: Rolling applications accepted
Application deadline: Rolling applications accepted
Guidelines and application: www.carfintl.org/grants.html

Cornelia de Lange Syndrome Foundation
302 West Main St., #100
Avon, CT 06001
Phone: 860-676-8166
E-mail: outreach@CdLSusa.org
Web site: www.CdLSusa.org

Disease name: Cornelia de Lange Syndrome
Amount: up to $5,000
Length of study: one year
Letter of Intent deadline: N/A
Application deadline: April 15, 2008
Guidelines and application: www.cdlsusa.org/research/index.shtml

Children's Cardiomyopathy Foundation (CCF)
PO Box 547
Tenafly, NJ 07670
Phone: 866-808-CURE (2873), ext 901
Fax: 201-227-7016
E-mail: Lisa Yue, Executive Director
Web site: www.childrenscardiomyopathy.org

Disease Name: Pediatric Cardiomyopathy
Funding: $25,000 to US$50,000 for one year of total direct costs. For grant renewals, CCF funding is limited to two years.
Application deadline: September 5, 2008
Decision: January 2009
Guidelines and application: www.childrenscardiomyopathy.org

To view NORD's RFPs, click here.