Research

Funding Opportunities From NORD Member Organizations

NORD's member organizations are invited to post information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP.

NORD member organizations may submit copy for this page to webmaster@rarediseases.org. All entries should be submitted in the format used below.

SAMPLE Member Organization RFP:

Caring FOR Carcinoid Foundation
One Kendall Square
PMB 180
Cambridge, MA 02139
Phone: 857-222-5492
E-mail: research@caringforcarcinoid.org
Web: www.caringforcarcinoid.org

Disease name: Carcinoid
Amount: up to $X,XXX per year
Length of study: X years
Letter of Intent deadline: Month Date, Year, Time
Application deadline: Month Date, Year, Time
Guidelines and application: www.caringforcarcinoid.org/research/grantsavailable.asp

----------------------------------------

National Ataxia Foundation
2600 Fernbrook Lane N, Suite 119
Minneapolis, MN 55447-4752
Phone: 763-553-0020
E-mail: naf@ataxia.org
Web site: www.ataxia.org

Disease name: Ataxia
Amount: up to $50,000 per year
Length of study: 1 year

For new and innovative studies that are relevant to the cause, pathogenesis or treatment of ataxia, both hereditary and sporadic.

Letter of Intent due - 7/15/09
Application due - 8/15/09

Young Investigator Award
Letter of Intent due - 8/1/09
Application due – 9/1/09

Research Fellowship Award
Letter of Intent due – 8/15/09
Application due – 9/15/09

Guidelines and application: http://www.ataxia.org/research/ataxia-research-grants.aspx

Pediatric Neurotransmitter Disease (PND) Association
PO Box 180622
Delafield, WI 53018
Phone: 262-646-5133
E-mail: pnd@pndassoc.org
Web site: www.pndassoc.org

Disease names: Succinic Semialdehyde Dehydrogenase Deficiency (SSADH), Tyrosine Hydroxylase Deficiency (TH), Aromatic L Amino Acid Decarboxylase Deficiency (AADC), GTP I Cyclohydrolase Deficiency (GTPCH), Sepiapterin Reductase Deficiency (SR), and Non disease specific PND research.
Amount: up to $45,000 per year
Length of study: 2 years
Letter of Intent deadline: July 1, 2009
Application deadline: October 1, 2009
Grants to be announced: March 1, 2010
Guidelines and application: www.pndassoc.org/grants

Fellowship, NIH, Nephropathic Cystinosis
William A. Gahl, MD, PhD, of the National Human Genome Research Institute, would like to train an expert in nephropathic cystinosis at the National Institutes of Health. Optimally, the fellowship training would follow a renal fellowship, last approximately 3 years, and provide a springboard to an academic career in cystinosis and related fields. However, geneticists may also be interested in this career track. Dr. Gahl has cared for 250-300 individuals with cystinosis and has more than 100 active patients. There exists ample opportunity to perform clinical and basic research into cystinosis, publish in peer-reviewed journals, and access the vast resources of the NIH Clinical Center. This is not a service position; it is intended to provide the next generation with an authority in the disease. The successful candidate will work primarily on cystinosis, but may also perform research into related disorders with renal manifestations. There may be an opportunity to participate in an ABMG-approved program leading to certification in Biochemical Genetics. The Cystinosis Research Network will support this fellowship through an NHGRI Gift Fund. To discuss this further, please contact Dr. Gahl at bgahl@helix.nih.gov or 10 Center Drive, Building 10, Room 10C-103, NHGRI, NIH, Bethesda, Maryland 20892-1851 (phone 301-402-2739). The Department of Health and Human Services and the National Institutes of Health are equal opportunity employers.

Cicatricial Alopecia Research Foundation
P.O. Box 64158
Los Angeles, CA 90064
Phone: (310)475-2419
E-mail: research@carfintl.org
Web site: www.carfintl.org

Disease name: Cicatricial Alopecia
Amount: $5000 up to $20,000
Length of study: for up to 2 years MAX
Letter of Intent deadline: Rolling applications accepted
Application deadline: Rolling applications accepted
Guidelines and application: www.carfintl.org/grants.html

To view NORD's RFPs, click here.