NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Research
Research Grant Program
NORD 2009 Research Grant Recipients
The following researchers were chosen to receive grant funding during the MAC
teleconference of November 9, 2009:
(1) Arteriovenous Malformation
Susan Y. Bookheimer, PhD; Neil Martin, MD
UCLA School of Medicine, Center for Cognitive Neurosciences,
Los Angeles, California
"Mapping Language Reorganization in AVM Patients with fMRI and Intraoperative
Corticography"
(2) Essential Thrombocythemia
Alison R. Moliterno, MD
Johns Hopkins University School of Medicine, Baltimore, Maryland
"Genetic Basis of Essential Thrombocytosis"
(3) Olivopontocerebellar Atrophy (2 awards)
Puneet Opal, MD
Northwestern University, Chicago, Illinois
"Cellular Basis of SCA1"
Jeremy D. Schmahmann, MD
Massachusetts General Hospital, Boston, Massachusetts
"Diffusion MRI Biomarkers of Cerebellar Circuits and Connections in SCA1 Mouse"
(4) Pseudomyxoma Peritonei (3 awards, with funding by the PMP Research Foundation)
Marc Pocard, MD PHD (In Honor Of Mel R.Kurtz)
The National Institute of Medical Research
Angiogenesis and Translational Research Department
Paris, France
"Development of Animal Models for the Study of Pseudonyxome and Evaluation of the
Role of Anti-Angiogenesis in the Control of this Tumor."
Andrew Renehan, MD (In Honor Of Dutch Culbertson and Jerry Lewandowski)
The Christie NHS Foundation Trust, University of Manchester,
Manchester, United Kingdom
"The Development and Global Gene Characterization of an Immortalized Pseudomyxoma
Peritonei Cell Culture System for Pre Clinical Testing of Anti-tumor Therapies"
Herbert J. Zeh III (In Honor Of Dutch Culbertson and Jerry Lewandowski)
University of Pittsburgh Medical Center, Pittsburg, Pennsylvania
"Clonal Analyses of Pseudomyxoma Peritonei (PMP) to Identify Novel Targets for
Personalized Therapy"
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Help NORD improve the lives of people with rare diseases. |
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Since 1983, working toward the prevention, treatment, and cure of rare
“orphan” diseases.
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Previous Awards
2008 Research Award Announcements
2007 Research Award Announcements
2005 Research Award Announcements
2004 Research Award Announcements
2003 Research Award Announcements
2002 Research Award Announcements
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Free Booklets For Physicians
NORD offers
free booklets for physicians and other medical profes- sionals. To request copies,
or learn how topics are selected, click here.
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