Disease Information from NORD, National Organization for Rare Disorders, Inc.

The National Organization for Rare Disorders (NORD)

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• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

Research

NORD/Roscoe Brady Lysosomal Storage Diseases Fellowships

The NORD/Roscoe Brady Lysosomal Storage Diseases Fellowships provide $50,000 to $70,000 per year to young physicians who desire to establish careers in lysosomal storage diseases clinical medicine. Dr. Brady is an NIH scientist who discovered the metabolic basis of several lysosomal storage diseases and who pioneered effective enzyme replacement therapies for Gaucher and Fabry diseases. This program is funded by generous donations from the Genzyme Corporation.

Any researcher who would like to be added to the mailing list for notification of funding opportunities may contact NORD at research@rarediseases.org or call (203) 744-0100.

NORD/Roscoe Brady Lysosomal Storage Diseases Fellowship for 2006
Manisha Balwani, MD, MS, Mount Sinai School of Medicine, New York City, “Modifier Genes in Type 1 Gaucher Disease” Details.

NORD/Roscoe Brady Lysosomal Storage Diseases Fellowship for 2005
Yang Lu, MD, Albert Einstein College of Medicine, Bronx, NY, "Recombinant Simian Virus 40 for Gene Therapy of Lysosomal Storage Diseases"

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Help NORD improve the lives of people with rare diseases.

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Free Booklets For Physicians

NORD offers free booklets for physicians and other medical profes-
sionals. To request copies, or learn how topics are selected,
click here.

Networking Program

If you would like to participate in our Networking Program, become a member of NORD.

Database Subscriptions

Subscriptions make it possible for institutions, such as libraries, schools, universities, and hospitals, to provide access to all the information in NORD’s databases. Get your subscription today.

Last modified Thursday, December 10, 2009