NORD's
Washington Office
 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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**IMPORTANT**
The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
A-T Children's Project (Ataxia Telangiectasia Children's Project)
Address:
3002 Enfield Road
Austin, TX 78703
USA
Phone: 512-472-4892
Fax: 512-472-4892
800 Number: 877-873-2828
TDD: --
Email Address: mhoward@atproject.org
The A-T Children's Project (Ataxia Telangiectasia Children's Project) is a national non-profit organization dedicated to funding and supporting research into the cause, treatment, and eventual cure of Ataxia-telangiectasia. Ataxia-Telangiectasia is a rare inherited progressive disorder characterized by an impaired ability to control voluntary movements (ataxia); rapid, involuntary eye movements (nystagmus); permanent dilation of certain small blood vessels, resulting in small red lesions on the skin and other areas (telangiectasia); and immune deficiency, causing an increased predisposition to certain bacterial infections and malignancies. The A-T Project was established in 1992 to raise funds for research into immediate treatments for children and adults who are diagnosed with A-T. Areas of treatment research include nutritional therapies, dietary management, use of cytokines, as well as more conventional drug therapies. The A-T Project also provides parent education and funds for families to travel to the NIH-funded A-T Clinical Research Center at Children’s Hospital of Philadelphia. Educational materials available from the A-T Project include "Ataxia-Telangiectasia: A Guide to Pre-Natal Diagnosis and the Genetic Aspects of A-T;" "Ataxia-Telangiectasia: A Guide to Therapies;" and "A Teacher’s Guide to Ataxia-Telangiectasia."
Website: http://www.atproject.org
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
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**IMPORTANT**
The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
A-T Children's Project (Ataxia Telangiectasia Children's Project)
a/k/a: A-TCP
Address:
5300 W. Hillsboro Blvd. Suite 105
Coconut Creek, FL 33073
USA
Phone: 954-481-6611
Fax: 954-725-1153
800 Number: 800-543-5728
TDD: --
Email Address: info@atcp.org
The A-T Children's Project (Ataxia Telangiectasia Children's Project) is a national, non-profit organization that was established in 1993. Ataxia-telangiectasia is a rare, inherited, progressive disorder characterized by an impaired ability to control voluntary movement (ataxia); rapid, involuntary eye movements (nystagmus); permanent dilation of certain small blood vessels, resulting in small red lesions on the skin and other areas (telangiectasia); and immune deficiency, causing an increased predisposition to certain bacterial infections and malignancies. The purpose of the project is to raise funds to accelerate scientific research aimed at finding a cure or a therapy that would improve the lives of affected children. The specific goals include finding a cure or therapy; increasing awareness of the disorder; and encouraging and funding scientific research directed at specific treatments. The project's activities also include the establishment and maintenance of a cell-bank for unlimited access by research scientists. The A-T Children's Project has established a National AT Clinical Center at Johns Hopkins Hospital, Baltimore, MD.
Website: http://www.atcp.org
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
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