The National Organization for Rare Disorders (NORD)

Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Accord Alliance
a/k/a:   Accord Alliance

Address:
398 Columbus Avenue #294
Boston, MA 02116-6008
USA

Phone: 617-488-9770
Fax: 801-348-5350
Email Address: anthony.asciutto@accordalliance.org

Accord Alliance is a voluntary organization whose mission is to promote comprehensive and integrated approaches to healthcare that enhance the health and well-being of people and families affected by disorders of sex development (DSD) by fostering collaboration among all stakeholders. Accord Alliance provides a web-based clearinghouse of educational and informational resources to meet diverse stakeholder information needs and support the healthcare decision-making processes of providers, patients, parents, payers, and researchers working to improve health care for DSD. They are establishing collaborative relationships with emerging interdisciplinary DSD teams and developing a transferable model of care, clinical guidelines and protocols, and decision aids to support providers in their efforts to deliver culturally competent, patient-centered care that engages the patient and family in understanding DSD and managing healthcare and social support services. Accord Alliance encourages rapid identification and sharing of lessons learned and best-practice approaches across their collaborative teams and other emerging teams by supporting symposiums, webinars and other means of information sharing. DSD, also commonly referred to as “intersex”, is a grouping of congenital conditions in which development of chromosomal, gonadal, or anatomic sex is atypical.

Website: http://www.accordalliance.org


The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.

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Last modified Wednesday, November 26, 2008