Disease Information from NORD, National Organization for Rare Disorders, Inc.

• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Agenesis of the Corpus Callosum (ACC) Network
a/k/a: ACC Network

Address:
5749 Merrill Hall
Room 18
Orono, ME 04469-5749

Phone: 207-581-3119
Fax: 207-581-3120
800 Number: --
TDD: --
Email Address: um-acc@maine.edu

The Agenesis of the Corpus Callosum (ACC) Network is a not-for-profit, self-help organization dedicated to providing information and support to individuals with agenesis of the corpus callosum, their families, and professionals. This condition is characterized by the complete or partial absence of the thick band of nerve fibers (corpus callosum) that connects the two cerebral hemispheres. Established in 1990, the Agenesis of the Corpus Callosum Network also provides support to individuals with other callosal disorders, including dysgenesis (malformation) and hypoplasia (thin) of the corpus callosum. The Agenesis of the Corpus Callosum Network facilitates the exchange of information, support, and resources through its networking programs.

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.

Last modified Wednesday, November 26, 2008