**IMPORTANT**
The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no
implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information
is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Alpha-1 Advocacy Alliance
Address:
PO Box 202
103 Rapidan Church Lane
Wolftown, VA 22748
Phone: 540-948-6777
Fax: 540-948-6763
800 Number: 866-367-2122
Email Address: webmaster@alpha1advocacy.org
Alpha-1 Advocacy Alliance is a voluntary organization whose mission is to advocate for all individuals affected by alpha-1-antitrypsin deficiency (A1AD) through personal advocacy, education, support, and public policy. A1AD is a hereditary disorder characterized by low levels of a protein called alpha-1-antitrypsin (A1AT) which is found in the blood. This deficiency may predispose an individual to several illnesses but most commonly appears as emphysema, less commonly as liver disease, or more rarely, as a skin condition called panniculitis. A deficiency of A1AT allows substances that break down protein (proteolytic enzymes) to attack various tissues of the body. This results in destructive changes in the lungs (emphysema) and may also affect the liver and joints.
Website: http://www.alpha1advocacy.org
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted
by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to
the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes
without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on
an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source
(NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed
versions are strictly prohibited.
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.