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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Copyright 1999, 2001, 2004
Synonyms of Adenoid Cystic Carcinoma
- ACC
- Adenocystic Carcinoma
- Cribriform Carcinoma
- Cylindroma
Disorder Subdivisions
General Discussion
This disease entry was made possible due to the generosity of the Kathleen Keany Memorial Foundation, 8502 East Chapman Avenue, Suite 195, Orange, CA 92869, (714) 538-6920.
Adenoid cystic carcinoma (ACC) is a relatively rare form of cancer that most commonly develops in the salivary glands or other regions of the head and neck. In some cases, ACC may arise in other primary sites, such as the skin; the breast; the neck of the uterus (cervix) in females; the prostate gland in males; or other areas.
The term "cancer" refers to a group of diseases characterized by abnormal, uncontrolled cellular growth that invades surrounding tissues and may spread (metastasize) to distant bodily tissues or organs via the bloodstream, the lymphatic system, or other means. Different forms of cancer, including adenoid cystic carcinoma, may be classified based upon the cell type involved, the specific nature of the malignancy, the tissues or organs affected, and the disease's clinical course.
ACC tumors are characterized by a distinctive pattern in which abnormal "nests" or cords of certain cells (epithelial cells) surround and/or infiltrate ducts or glandular structures within the affected organ. These structures are typically filled with a mucous-like material or contain abnormal fibrous membranes (hyaline membranes). Such characteristics are apparent during microscopic evaluation of the tumor cells. ACC is considered a low-grade malignancy that has a history of slow growth, but tends to be aggressively invasive and to infiltrate nearby lymph nodes as well as the "sheaths" or coatings surrounding nerve fibers (perineural spaces). This form of cancer may have a tendency to recur later at the site where it first developed (local recurrence) and to spread to distant bodily sites, particularly the lungs, potentially resulting in life-threatening complications.
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Organizations related to Adenoid Cystic Carcinoma
- Adenoid Cystic Carcinoma Alliance
PO Box 82
1649 N. Pacana Way
Green Valley AZ 85614
Phone #: 520-625-5495
800 #: --
e-mail: sharon.lane@rare-cancer.org
Home page: http://www.rare-cancer.org/adenoid-cystic-carcinoma/
- Adenoid Cystic Carcinoma Organization International
5605 77th Street East
Puyallup WA 98371
Phone #: --
800 #: --
e-mail: accoi_info@yahoo.com
Home page: www.accoi.org
- Adenoid Cystic Carcinoma Research Foundation
P.O. Box 442
Needham MA 02494
Phone #: 781-248-9699
800 #: N/A
e-mail: info@accrf.org
Home page: http://www.accrf.org
- American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta GA 30329
Phone #: 404-320-3333
800 #: 800-227-2345
e-mail: N/A
Home page: http://www.cancer.org
- Association of Community Cancer Centers
11600 Nebel Street
#201
Rockville MD 20852
Phone #: 301-984-9496
800 #: --
e-mail: N/A
Home page: http://www.accc-cancer.org
- Canadian Cancer Society
10 Alcorn Avenue
Suite 200
Toronto
Toronto None M4V 3B1
Phone #: (41-6) -961-7223
800 #: (88-8) -939-3333
e-mail: ccs@cancer.ca
Home page: http://www.cancer.ca/
- Cancer Hope Network
2 North Road
Suite A
Chester NJ 07930
Phone #: 908-879-4039
800 #: 877-467-3638
e-mail: info@cancerhopenetwork.org
Home page: http://www.cancerhopenetwork.org
- Cancer.Net
American Society of Clinical Oncology
2318 Mill Road
Suite 800
Alexandria VA 22314
Phone #: 571-483-1780
800 #: 888-651-3038
e-mail: contactus@cancer.net
Home page: http://www.cancer.net/patient
- Friends of Cancer Research
2231 Crystal Drive
Suite 200
Arlington VA 22202
Phone #: 703-302-1503
800 #: N/A
e-mail: info@focr.org
Home page: http://www.focr.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- International Cancer Alliance for Research and Education (ICARE)
4853 Cordell Avenue
Suite 14
Bethesda MD 20814
Phone #: 301-656-3461
800 #: 800-422-7361
e-mail: info@icare.org
Home page: http://www.icare.org
- Lance Armstrong Foundation
2201 E. Sixth Street
Austin TX 78702
Phone #: 512-236-8820
800 #: 877-236-8820
e-mail: media@livestrong.org
Home page: http://www.livestrong.org
- National Cancer Institute
6116 Executive Blvd, MSC 8322, Room 3036A
Bethesda MD 20892-8322
Phone #: 301-435-3848
800 #: 800-422-6237
e-mail: N/A
Home page: http://www.cancer.gov
- National Coalition for Cancer Survivorship
1010 Wayne Avenue
Suite770
Silver Spring MD 20910-5600
Phone #: 301-650-9127
800 #: 877-622-7937
e-mail: infor@canceradvocacy.org
Home page: http://
- OncoLink: The University of Pennsylvania Cancer Center Resource
3400 Spruce Street
2 Donner
Philadelphia PA 19104-4283
Phone #: 215-349-5445
800 #: --
e-mail: editors@oncolink.upenn.edu
Home page: http://www.oncolink.upenn.edu
- Rare Cancer Alliance
1649 North Pacana Way
Green Valley AZ 85614
Phone #: 520-625-5495
800 #: --
e-mail: sharon.lane@rare-cancer.org
Home page: http://www.rare-cancer.org
- Support for People with Oral and Head and Neck Cancer, Inc.
P.O. Box 53
Locust Valley NY 11560-0053
Phone #: 516-759-5333
800 #: --
e-mail: info@spohnc.org
Home page: http://www.spohnc.org
- Wellness Community
919 18th Street N.W.
Suite 54
Washington DC 20006
Phone #: 202-659-9709
800 #: 888-793-9355
e-mail: help@thewellnesscommunity.org
Home page: http://www.thewellnesscommunity.org
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