NORD's
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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Copyright 1986, 1989, 1993, 1994, 2000
Synonyms of Amenorrhea, Primary
- Absence of Menstruation, Primary
- PA
Disorder Subdivisions
General Discussion
Amenorrhea is the absense of menstrual periods. The term "primary amenorrhea" is used if periods have never started in females aged 16 or older. It is a rare gynecological disorder. Regular menstruation usually begins (menarche) within two years of the onset of puberty. Absence of menses by age 16-18 constitutes Primary Amenorrhea.
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Organizations related to Amenorrhea, Primary
- American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: aarda@aarda.org
Home page: http://www.aarda.org/
- AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: moderator@autoimmunitycommunity.org
Home page: http://www.autoimmunitycommunity.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- National Adrenal Diseases Foundation
505 Northern Boulevard
Great Neck NY 11021
Phone #: 516-487-4992
800 #: --
e-mail: NADFmail@aol.com
Home page: http://www.nadf.us/
- National Women's Health Network
514 10th Street NW
Suite 400
Washington D.C. 20004
Phone #: 202-628-7814
800 #: --
e-mail: nwhn@nwhn.org
Home page: http://www.womenshealthnetwork.org
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