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Copyright 1986, 1995, 2002, 2005
Synonyms of Arnold-Chiari Malformation
- ACM
- Arnold-Chiari Malformation
- Cerebellomedullary Malformation Syndrome
Disorder Subdivisions
- Chiari Type I (Chiari Malformation I)
- Chiari Type II (Chiari Malformation II)
General Discussion
Arnold-Chiari malformation is a rare malformation of the brain that is sometimes, but not always, apparent at birth. It is characterized by abnormalities in the area where the brain and spinal cord meet that cause part of the cerebellum to protrude through the bottom of the skull (foramen magnum) into the spinal canal. This interferes with the flow of cerebral spinal fluid to and from the brain, leading to accumulation of cerebral spinal fluid in the empty spaces of the spine and brain. The portion of the cerebellum that protrudes into the spinal canal can become elongated and is called the "cerebellar tonsils" because it resembles the tonsils.
There are four types of Chiari malformation. Depending on the type, the impact on the affected individual may range from mild to severe.
Organizations related to Arnold-Chiari Malformation
- American Association of Neurological Surgeons
5550 Meadowbrook Drive
Rolling Meadows IL 60008-3852
Phone #: 847-378-0500
800 #: 888-566-2267
e-mail: info@aans.org
Home page: http://www.NeurosurgeryToday.org
- American Syringomyelia & Chiari Alliance Project Inc.
300 N. Green Street, Suite 412
PO Box 1586
Longview TX 75606-1586
Phone #: 903-236-7079
800 #: 800-272-7282
e-mail: info@asap.org
Home page: http://www.asap.org
- Birth Defect Research for Children, Inc.
800 Celebration Ave, Suite 225
Orlando FL 34747
Phone #: 407-566-8304
800 #: --
e-mail: staff@birthdefects.org
Home page: http://www.birthdefects.org
- C&S Patient Education Foundation
320 Osprey Court
Wexford PA 15090
Phone #: 724-940-0116
800 #: N/A
e-mail: N/A
Home page: N/A
- Canadian Syringomyelia Network
69 Penny Crescent
Markham
Ontario None L3P 5X7
Phone #: 905-471-8278
800 #: --
e-mail: barb@csn.ca
Home page: http://www.csn.ca
- Chiari & Syringomyelia Foundation (CSF)
29 Crest Loop
Staten Island NY 10312
Phone #: 718--96-6-2593
800 #: N/A
e-mail: dpoppe@CSFinfo.org
Home page: http://www.CSFinfo.org
- Chiari and Syringomyelia Network
4231 N. Winfield Scott Plaza #7
Scottsdale AZ 85251
Phone #: 480-350-7177
800 #: 866-661-7607
e-mail: csinfo@chiarisn.org
Home page: http://www.chiarisn.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- Hydrocephalus Association
870 Market Street
Suite 705
San Francisco CA 94102
Phone #: 415-732-7040
800 #: 888-598-3789
e-mail: pip@hydroassoc.org
Home page: http://www.hydroassoc.org
- Hydrocephalus Support Group, Inc.
P.O. Box 4236
Chesterfield MO 63006-4236
Phone #: 636-532-8228
800 #: --
e-mail: hydrodb@earthlink.net
Home page: N/A
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-997-4488
800 #: 888-663-4637
e-mail: Askus@marchofdimes.com
Home page: http://www.marchofdimes.com
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
- Spina Bifida Association of America
4590 MacArthur Boulevard NW
Suite 250
Washington DC 20007-4226
Phone #: 202-944-3285
800 #: 800-621-3141
e-mail: sbaa@sbaa.org
Home page: http://www.sbaa.org
- World Arnold Chiari Malformation Association
31 Newtown Woods Road
Newtown Square PA 19073
Phone #: 610-353-4737
800 #: N/A
e-mail: internautbhm2@comcast.net
Home page: http://www.wacma.com
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