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Arteriovenous Malformation

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NORD is grateful to Tracey P. Leedom, genetic counselor, and colleagues in the Marchuk Laboratory at Duke University for assistance in the preparation of this report.

Synonyms of Arteriovenous Malformation

Disorder Subdivisions

Arteriovenous Malformation of the Brain
Spinal Arteriovenous Malformation

General Discussion
Arteriovenous malformation (AVM) is a congenital defect in which arteries and veins are tangled and not connected by capillaries. The lack of capillaries allows blood traveling through the abnormal vessels to flow rapidly and under high pressure and prevents the nutrient rich blood in the arteries from reaching the tissues. AVM can occur in many different parts of the body, but those located in the brain, brainstem and spinal cord (neurological AVM) can affect the entire body.
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Organizations related to Arteriovenous Malformation

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
National Organization of Vascular Anomalies - NOVA
PO Box 38216
Greensboro NC 27438-8216
Phone #: N/A
800 #: N/A
e-mail: Khall@mail.novanews.org
Home page: http://www.novanews.org

Last modified Wednesday, November 26, 2008