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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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should never be used for diagnostic or treatment purposes. If you have questions regarding
a medical condition, always seek the advice of your physician or other qualified health
professional. NORD's reports provide a brief overview of rare diseases. For more specific
information, we encourage you to contact your personal physician or the agencies listed as
"Resources" on this report.
Copyright 1986, 1987, 1988, 1989, 1990, 1992, 1994, 1995, 1997, 1998, 1999, 2000, 2002, 2004, 2009
NORD is very grateful to Kenneth T. Calamia, MD, Chairman, Division of Rheumatology, Department of Internal Medicine, Mayo Clinic, Jacksonville, Florida, for assistance in the preparation of this report.
Synonyms of Behcet's Syndrome
- Adamantiades-Behcet's Syndrome
- BD
- Behcet's Disease
- Hulusi-Behcet's Syndrome
- Oculo-Bucco-Genital Syndrome
- Triple Symptom Complex of Behcet
Disorder Subdivisions
General Discussion
Behcet's syndrome is a rare multisystem inflammatory disorder characterized by ulcers affecting the mouth and genitals, various skin lesions, and abnormalities affecting the eyes. Symptoms include areas of abnormal mucous membrane changes (lesions) of the mouth and genitals that tend to disappear and recur spontaneously. Inflammation of the eyes (anterior uveitis, posterior uveitis, or panuveitis) also affects individuals with BehcetÂ’s syndrome. Additional systems of the body may also be affected including the joints, blood vessels, central nervous system, and/or digestive tract. The exact cause of BehcetÂ’s syndrome is unknown.
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Organizations related to Behcet's Syndrome
- American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: aarda@aarda.org
Home page: http://www.aarda.org/
- American Behcet's Disease Association
PO Box 869
Smithtown NY 11787-0869
Phone #: 631-656-0537
800 #: 800-723-4238
e-mail: mgiannitelli@behcets.com
Home page: http://www.behcets.com
- Arthritis Foundation
P.O. Box 7669
Atlanta GA 30357-0669
Phone #: 404-965-7627
800 #: 800-283-7800
e-mail: arthritisfoundation@arthritis.org
Home page: http://www.arthritis.org
- AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: moderator@autoimmunitycommunity.org
Home page: http://www.autoimmunitycommunity.org
- Autoimmune Information Network, Inc
PO Box 4121
Brick NJ 08723
Phone #: 732-664-9259
800 #: N/A
e-mail: autoimmunehelp@aol.com
Home page: http://www.aininc.org
- Behcet's Organisation Worldwide
PO Box 27
Watchet
Somerset Intl TA23 0YJ
Phone #: 077-13 -220303
800 #: N/A
e-mail: information@behcetsuk.org
Home page: http://www.behcets.org
- CNS Vasculitis Foundation
9930 Morningfield
San Antonio TX 78250-3743
Phone #: 210-523-8234
800 #: N/A
e-mail: info@cnsvf.org
Home page: http://www.cnsvf.org
- Erythema Nodosum Yahoo Support Group
None
None None None
Phone #: N/A
800 #: N/A
e-mail: N/A
Home page: http://health.groups.yahoo.com/group/erythema_nodosum_Group/
- European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg None D-79106
Phone #: +31- 73--6992965
800 #: N/A
e-mail: info@esid.org
Home page: http://www.esid.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info
- NIH/National Eye Institute
Building 31 Rm 6A32
31 Center Dr MSC 2510
Bethesda MD 20892-2510
Phone #: 301-496-5248
800 #: --
e-mail: 2020@nei.nih.gov
Home page: http://www.nei.nih.gov/
- National Association for Visually Handicapped
22 West 21st Street
New York NY 10010
Phone #: 212-889-3141
800 #: --
e-mail: staff@navh.org
Home page: http://www.navh.org
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
- Vasculitis Foundation
P.O. Box 28660
Kansas City MO 64188-8660
Phone #: 816-436-8211
800 #: 800-277-9474
e-mail: vf@vasculitisfoundation.org
Home page: http://www.vasculitisfoundation.org
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