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Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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"Resources" on this report.
Copyright 1991, 1992, 1993, 1995, 1996, 1997, 1998, 2004
Synonyms of Brain Tumors, General
- Intracranial Tumors
- Primary Tumors of Central Nervous System
Disorder Subdivisions
- Benign Tumors of the Central Nervous System
- Brain Tumors, Benign
- Brain Tumors, Malignant
- Malignant Tumors of the Central Nervous System
General Discussion Brain tumors are abnormal growths in the brain that can be either cancerous (malignant) of noncancerous (benign). The effects on the brain of malignant and benign brain tumors are very similar and can cause the same types of problems depending upon the type of tumor and where it is located in the brain.
Organizations related to Brain Tumors, General
- American Association of Neurological Surgeons
5550 Meadowbrook Drive
Rolling Meadows IL 60008-3852
Phone #: 847-378-0500
800 #: 888-566-2267
e-mail: info@aans.org
Home page: http://www.NeurosurgeryToday.org
- American Brain Tumor Association
2720 River Road
Des Plaines IL 60018
Phone #: 847-827-9910
800 #: 800-886-2282
e-mail: info@abta.org
Home page: http://www.abta.org
- American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta GA 30329
Phone #: 404-320-3333
800 #: 800-227-2345
e-mail: N/A
Home page: http://www.cancer.org
- American Childhood Cancer Organization
10400 Connecticut Avenue
Suite 205 Kensington MD 20895
Phone #: 301-962-3520
800 #: 800-366-2223
e-mail: staff@acco.org
Home page: http://www.candlelighters.org
- Bird, Edward D., M.D.
Brain Tissue Resource Center
Mailman Research Center McLean Hospital 115 Mill Street Belmont MA 02178
Phone #: 617-855-2400
800 #: --
e-mail: N/A
Home page: N/A
- Brain Tumor Foundation for Children, Inc.
6065 Roswell Road Suite 505
Atlanta GA 30328-4015
Phone #: 404-252-4107
800 #: --
e-mail: info@braintumorkids.org
Home page: http://www.braintumorkids.org
- Brain Tumour Foundation of Canada
620 Colborne Street
Suite 301 London Ontario None N6B 3R9
Phone #: (51-9) -642-7755
800 #: (80-0) -265-5106
e-mail: braintumour@braintumour.ca
Home page: http://www.braintumour.ca
- Brain Tumour UK
Tower House
Latimer Park Chesham None HP5 1TU
Phone #: 084-5 4-500 386
800 #: --
e-mail: enquiries@braintumouruk.org.uk
Home page: http://www.braintumouruk.org.uk
- Cancer Research UK
PO Box 123
Lincoln's Inn Fields London Intl WC2A 3PX
Phone #: 020- 71-21 6699
800 #: N/A
e-mail: N/A
Home page: http://www.imperialcancer.co.uk
- Cancer Support Community
919 18th Street N.W.
Suite 54 Washington DC 20006
Phone #: 202-659-9709
800 #: 888-793-9355
e-mail: N/A
Home page: www.cancersupportcommunity.org
- Cancer.Net
American Society of Clinical Oncology
2318 Mill Road Suite 800 Alexandria VA 22314
Phone #: 571-483-1780
800 #: 888-651-3038
e-mail: contactus@cancer.net
Home page: http://www.cancer.net/patient
- Central Brain Tumor Registry of the United States (CBRRUS)
244 E. Ogden Avenue
Suite 116 Hinsdale IL 60521
Phone #: 630-655-4786
800 #: --
e-mail: cbtrus@aol.com
Home page: http://www.cbtrus.org
- Childhood Cancer Foundation - Candlelighters Canada
21 St. Clair Avenue East, Suite 801
Toronto, Ontario Intl M4T 1L9
Phone #: (41-6) -489-6440
800 #: (80-0) -363-1062
e-mail: info@childhoodcancer.ca
Home page: http://www.childhoodcancer.ca
- Children's Brain Tumor Foundation
274 Madison Avenue, Suite 1004
New York NY 10016
Phone #: 212-448-1595
800 #: 866-228-4673
e-mail: info@cbtf.org
Home page: http://www.cbtf.org
- Epstein, Fred, J., M.D.
Department of Pediatric Neurosurgery
New York University School of Medicine 550 First Avenue New York NY 10016
Phone #: 212-263-6419
800 #: --
e-mail: N/A
Home page: N/A
- Friends of Cancer Research
2231 Crystal Drive
Suite 200 Arlington VA 22202
Phone #: 703-302-1503
800 #: N/A
e-mail: info@focr.org
Home page: http://www.focr.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- Harvard Brain Tissue Resource Center
McLean Hospital
115 Mill Street Belmont MA 02478
Phone #: 617-855-2400
800 #: 800-272-4622
e-mail: hbtrc@mclean.harvard.edu
Home page: http://www.brainbank.mclean.org
- International Brain Tumour Alliance (IBTA)
PO Box 244
Tadworth Surrey None KT20 5WQ
Phone #: 004-4 (-0) 1737 813872
800 #: N/A
e-mail: chair@theibta.org OR kathy@theibta.org
Home page: http://www.theibta.org
- Lance Armstrong Foundation
2201 E. Sixth Street
Austin TX 78702
Phone #: 512-236-8820
800 #: 877-236-8820
e-mail: media@livestrong.org
Home page: http://www.livestrong.org
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- National Brain Tumor Society
124 Watertown Street, Suite 2D
Watertown MA 02472
Phone #: 617-924-9997
800 #: (80-0) -770-8287
e-mail: info@braintumor.org
Home page: http://www.braintumor.org
- National Cancer Institute
6116 Executive Blvd, MSC 8322, Room 3036A
Bethesda MD 20892-8322
Phone #: 301-435-3848
800 #: 800-422-6237
e-mail: cancergovstaff@mail.nih.gov
Home page: http://www.cancer.gov
- PLGA Foundation
98 Random Farms Drive
Chappaqua NY 10514
Phone #: N/A
800 #: N/A
e-mail: contact@fightplga.org
Home page: http://www.fightplga.org/
- Pediatric Brain Tumor Foundation
302 Ridgefield Court
Asheville NC 28806
Phone #: 828-665-6891
800 #: 800-253-6530
e-mail: N/A
Home page: http://www.pbtfus.org
- Pituitary Network Association (PNA)
P.O. Box 1958
Thousand Oaks CA 91358
Phone #: 805-499-9973
800 #: --
e-mail: pna@pituitary.org
Home page: http://www.pituitary.org,
- Rare Cancer Alliance
1649 North Pacana Way
Green Valley AZ 85614
Phone #: 520-625-5495
800 #: --
e-mail: sharon.lane@rare-cancer.org
Home page: http://www.rare-cancer.org
- Starting Point: To Connect with Resources Related to Pediatric Neuro-oncology
None
None None None
Phone #: --
800 #: --
e-mail: jragheb@newssun.med.miami.edu
Home page: http://www.med.miami.edu/neurosurgery/start_intro.htm
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