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"Resources" on this report.
Copyright 1989, 1990, 1997, 1999, 2002, 2003, 2007
Synonyms of Churg Strauss Syndrome
- Allergic Angiitis and Granulomatosis
- Allergic Granulomatosis
- Allergic Granulomatosis and Angiitis
- Churg-Strauss Vasculitis
- Eosinophilic Granulomatous Vasculitis
Disorder Subdivisions
General Discussion
Churg-Strauss Syndrome is a rare disorder that may affect multiple organ systems, particularly the lungs. The disorder is characterized by the formation and accumulation of an unusually large number of antibodies, abnormal clustering of certain white blood cells (eosinophilia), inflammation of blood vessels (vasculitis), and the development of inflammatory nodular lesions (granulomatosis).
Many individuals with Churg-Strauss Syndrome have a history of allergy. In addition, asthma and other associated lung (pulmonary) abnormalities (i.e., pulmonary infiltrates) often precede the development of the generalized (systemic) symptoms and findings seen in Churg-Strauss Syndrome by one or more years. Asthma, a chronic respiratory disorder, is characterized by inflammation and narrowing of the lungs’ airways, causing difficulties breathing (dyspnea), coughing, the production of a high-pitched whistling sound while breathing (wheezing), and/or other symptoms and findings.
Nonspecific findings associated with Churg-Strauss Syndrome typically include flu-like symptoms, such as fever, a general feeling of weakness and fatigue (malaise), loss of appetite (anorexia), weight loss, and muscle pain (myalgia). Additional symptoms and findings may be variable, depending upon the specific organ systems involved. Without appropriate treatment, serious organ damage and potentially life-threatening complications may result.
Although the exact cause of Churg-Strauss Syndrome is unknown, many researchers indicate that abnormal immunologic and autoimmune factors play an important role.
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Organizations related to Churg Strauss Syndrome
- American Lung Association
61 Broadway, 6th Floor
New York NY 10006
Phone #: 212-315-8700
800 #: 800-586-4872
e-mail: N/A
Home page: http://www.lungusa.org
- American Partnership for Eosinophilic Disorders
PO Box 29545
Atlanta GA 30359
Phone #: 713-493-7749
800 #: N/A
e-mail: mail@apfed.org
Home page: http://www.apfed.org
- Churg Strauss Syndrome Association
PO Box 671
Southampton MA 01073-0671
Phone #: 413-862-3636
800 #: N/A
e-mail: support@CSSAssociation.org
Home page: http://www.cssassociation.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda MD 20824-0105
Phone #: 301-592-8573
800 #: --
e-mail: nhlbiinfo@rover.nhlbi.nih.gov
Home page: N/A
- NIH/National Institute of Allergy and Infectious Diseases
6610 Rockledge Drive
MSC 6612
Bethesda MD 20892-6612
Phone #: 301-496-5717
800 #: --
e-mail: N/A
Home page: http://www.niaid.nih.gov/
- Vasculitis Foundation
P.O. Box 28660
Kansas City MO 64188
Phone #: 816-436-8211
800 #: 800-277-9474
e-mail: vf@vasculitisfoundation.org
Home page: http://www.vasculitisfoundation.org
- Vasculitis of the Central Nervous System
vasculitisoftheCNS@yahoogroups.com
None None None
Phone #: 770-978-5636
800 #: --
e-mail: SunnyBrook222@aol.com
Home page: http://www.VasculitisoftheCNS@yahoogroups.com
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