NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Copyright 1984, 1985, 1986, 1989, 1990, 1992, 1996, 1997, 1998, 1999, 2002
Synonyms of Cleft Palate and Cleft Lip
Disorder Subdivisions
General Discussion Cleft lip and palate are common malformations that are noticeable at birth (congenital). A cleft is an incomplete closure of the palate or lip or both. This defect is caused when the pair of long bones that form the upper jaw (maxillae) do not fuse properly during the early development. These are congenital (genetic) disorders that occur in the first trimester of pregnancy and may be barely noticeable or severe enough to require surgical and dental care, as well as speech therapy.
Organizations related to Cleft Palate and Cleft Lip
- AmeriFace
PO Box 751112
Las Vegas NV 89136
Phone #: 702-769-9264
800 #: 888-486-1209
e-mail: info@ameriface.org
Home page: http://www.ameriface.org
- Birth Defect Research for Children, Inc.
800 Celebration Ave, Suite 225
Orlando FL 34747
Phone #: 407-566-8304
800 #: --
e-mail: staff@birthdefects.org
Home page: http://www.birthdefects.org
- Children's Craniofacial Association
13140 Coit Road
Suite 517 Dallas TX 75240
Phone #: 214-570-9099
800 #: 800-535-3643
e-mail: contactCCA@ccakids.com
Home page: http://www.ccakids.com
- Cleft Palate Foundation
1504 East Franklin Street
Suite 102 Chapel Hill NC 27514-2820
Phone #: 919-933-9044
800 #: 800-242-5338
e-mail: info@cleftline.org
Home page: http://www.cleftline.org
- Forward Face, Inc.
317 East 34th Street
Suite 901A New York NY 10016
Phone #: 212-684-5860
800 #: 800-393-3223
e-mail: info@forwardface.org
Home page: http://www.forwardface.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- Let's Face It
University of Michigan
School of Dentistry / Dentistry Library 1011 N. University Ann Arbor MI 48109-1078
Phone #: 360-676-7325
800 #: --
e-mail: faceit@umich.edu
Home page: http://www.dent.umich.edu/faceit
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-997-4488
800 #: 888-663-4637
e-mail: Askus@marchofdimes.com
Home page: http://www.marchofdimes.com
- NIH/National Oral Health Information Clearinghouse
1 NOHIC Way
Bethesda MD 20892-3500
Phone #: 301-402-7364
800 #: --
e-mail: nohic@nidcr.nih.gov
Home page: http://www.nohic.nidcr.nih.gov
- National Foundation for Facial Reconstruction
317 East 34th Street
Room 901 New York NY 10016
Phone #: 212-263-6656
800 #: --
e-mail: N/A
Home page: http://www.nffr.org
- Wide Smiles
P.O. Box 5153
Stockton CA 95205-0153
Phone #: 209-942-2812
800 #: --
e-mail: josmiles@yahoo.com
Home page: http://www.widesmiles2.org/
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