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Copyright 1986, 1989, 1991, 1994, 1995, 1999, 2007, 2008
NORD is very grateful to William B. Dobyns, MD, Professor of Human Genetics, Neurology and Pediatrics at the Department of Human Genetics of the University of Chicago, for assistance in the preparation of this report.
Synonyms of Dandy Walker Malformation
- Dandy-Walker Cyst
- Dandy-Walker Deformity
- Dandy-Walker Syndrome
- DWM
- Hydrocephalus, Internal, Dandy-Walker Type
- Hydrocephalus, Noncommunicating, Dandy-Walker Type
- Luschka-Magendie Foramina Atresia
Disorder Subdivisions
General Discussion
Dandy-Walker malformation (DWM) is a brain malformation that occurs during embryonic development of the cerebellum and 4th ventricle. The cerebellum is the area of the brain that helps coordinate movement, and is also involved with cognition and behavior. The 4th ventricle is a space around the cerebellum that channels fluid from inside to around the outside of the brain. DWM is characterized by underdevelopment (small size and abnormal position) of the middle part of the cerebellum known as the cerebellar vermis, cystic enlargement of the 4th ventricle and enlargement of the base of the skull (posterior fossa). DWM is sometimes (20-80%) associated with hydrocephalus, in which blockage of the normal flow of spinal fluid leads to excessive amounts of fluid accumulating in and around the brain. This leads to abnormally high pressure within the skull and swelling of the head, and can lead to neurological impairment.
Organizations related to Dandy Walker Malformation
- Dandy-Walker Alliance, Inc.
10325 Kensington Pkwy
Suite 384
Kensington MD 20895
Phone #: N/A
800 #: 877-326-3992
e-mail: comments@dandy-walker.org
Home page: http://www.dandy-walker.org
- Dandy-Walker Syndrome Network
5030 142nd Path West
Apple Valley MN 55124
Phone #: 612-423-4008
800 #: --
e-mail: N/A
Home page: N/A
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- Guardians of Hydrocephalus Research Foundation
2618 Avenue Z
Brooklyn NY 11235
Phone #: 718-743-4473
800 #: 800-458-8655
e-mail: ghrf2618@aol.com
Home page: http://www.ghrforg.org/
- Hydrocephalus Association
870 Market Street
Suite 705
San Francisco CA 94102
Phone #: 415-732-7040
800 #: 888-598-3789
e-mail: pip@hydroassoc.org
Home page: http://www.hydroassoc.org
- Hydrocephalus Support Group, Inc.
P.O. Box 4236
Chesterfield MO 63006-4236
Phone #: 636-532-8228
800 #: --
e-mail: hydrodb@earthlink.net
Home page: N/A
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- National Association for Visually Handicapped
22 West 21st Street
New York NY 10010
Phone #: 212-889-3141
800 #: --
e-mail: staff@navh.org
Home page: http://www.navh.org
- National Hydrocephalus Foundation
12413 Centralia
Lakewood CA 90715-1623
Phone #: 562-924-6666
800 #: 888-857-3434
e-mail: nhf@earthlink.net
Home page: http://www.nhfonline.org
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
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