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Copyright 1985, 1986, 1988, 1990, 1991, 1993, 1999, 2001, 2002, 2007
Synonyms of Dysautonomia, Familial
- FD
- Hereditary Sensory and Autonomic Neuropathy, Type III (HSAN, Type III)
- Hereditary Sensory Neuropathy Type III
- HSAN-III
- HSN-III
- Riley-Day Syndrome
Disorder Subdivisions
General Discussion
Familial dysautonomia is a rare genetic disorder of the autonomic nervous system (ANS) that primarily affects people of Eastern European Jewish heritage. It is characterized by diminished sensitivity to pain, lack of overflow tearing in the eyes, a decrease in the number of knob-like projections that cover the tongue (fungiform papillae), unusual fluctuations of body temperature, and unstable blood pressure. Symptoms of this disorder are apparent at birth. The autonomic nervous system controls vital involuntary body functions.
Organizations related to Dysautonomia, Familial
- Dysautonomia Foundation, Inc.
315 West 39th Street
Suite 701
New York NY 10018
Phone #: 212-279-1066
800 #: --
e-mail: info@famdys.org
Home page: http://www.familialdysautonomia.org
- Dysautonomia Foundation, Inc., Toronto Chapter
250 Franklin Avenue
Thornhill
Ontario None L4J 7K5
Phone #: (90-5) -882-7725
800 #: --
e-mail: N/A
Home page: http://www.familialdysautonomia.org
- Familial Dysautonomia Hope Foundation
121 S. Estes Dr., Suite 205D
Chapell Hill NC 27514
Phone #: 919-969-1414
800 #: --
e-mail: info@fdhope.org
Home page: http://www.fdhope.org
- Familial Dysautonomia Now Foundation
1170 Green Knolls Drive
Buffalo Grove IL 60089
Phone #: 847-913-0455
800 #: N/A
e-mail: fdnow@comcast.net
Home page: http://www.fdnow.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-997-4488
800 #: 888-663-4637
e-mail: Askus@marchofdimes.com
Home page: http://www.marchofdimes.com
- National Dysautonomia Research Foundation
PO Box 301
Red Wing MN 55066-0102
Phone #: 651-267-0525
800 #: --
e-mail: ndrf@ndrf.org
Home page: http://www.ndrf.org
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
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