NORD's
Washington Office
 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
|
|
|
The National Organization for Rare Disorders (NORD) web site, its databases,
and the contents thereof are copyrighted by NORD. No part of the NORD web
site, databases, or the contents may be copied in any way, including but not
limited to the following: electronically downloading, storing in a retrieval
system, or redistributing for any commercial purposes without the express
written permission of NORD. Permission is hereby granted to print one hard
copy of the information on an individual disease for your personal use,
provided that such content is in no way modified, and the credit for the
source (NORD) and NORD’s copyright notice are included on the printed copy.
Any other electronic reproduction or other printed versions is strictly
prohibited.
The information in NORD's Rare Disease Database is for educational purposes only. It
should never be used for diagnostic or treatment purposes. If you have questions regarding
a medical condition, always seek the advice of your physician or other qualified health
professional. NORD's reports provide a brief overview of rare diseases. For more specific
information, we encourage you to contact your personal physician or the agencies listed as
"Resources" on this report.
Copyright 1989, 1997, 1999, 2000, 2002
Synonyms of Headache, Cluster
- Chronic Paroxysmal Hemicrania (Sjaastad Syndrome)
- Cluster Headaches
- Episodic paroxysmal hemicrania
- Familial cluster ehadaches
- Histamine cephalalgia
- Vasogenic Facial Pain
Disorder Subdivisions
- Chronic Cluster Headache
- Cyclic Cluster Headache
General Discussion
Cluster headaches are a rare form of severe disabling headache. The headaches are deep, non-throbbing, extremely painful ones that tend to recur in the same area of the head or face with each occurrence. They usually come on during sleep and may awaken an affected individual. In some cases, cluster headaches occur during the day as well. Cluster headaches tend to occur on and off daily for several weeks only to disappear for months or, in some cases, years. They typically last somewhere between 30 minutes and two hours. Cluster headaches are often associated with watering of the eyes and nose.
Chronic paroxysmal hemicrania and episodic paroxysmal hemicrania are variants of cluster headaches. Both forms closely resemble cluster headaches except for a few distinctive features, particularly their response to different treatment options.
.
Organizations related to Headache, Cluster
- American Council for Headache Education
19 Mantua Road
Mount Royal NJ 08061
Phone #: 856-423-0043
800 #: 800-255-2243
e-mail: achehq@talley.com
Home page: http://www.achenet.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- JAMA Migraine Information Center
Subscriber Services Center
American Medical Association
P.O. Box 10946
Chicago IL 60654
Phone #: (31-2) -670-7827
800 #: 800-262-2350
e-mail: ama-subs@ama-assn.org
Home page: http://www.ama-assn.org/special/migraine/migraine.htm
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- National Headache Foundation
820 North Orleans
Suite 217
Chicago IL 60610-3132
Phone #: N/A
800 #: 888-643-5552
e-mail: info@headaches.org
Home page: http://www.headaches.org
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
- Organization for Understanding Cluster Headaches (O.U.C.H.)
3225 Winding Way
Round Rock TX 78664
Phone #: 214-783-1899
800 #: --
e-mail: dd.ouch@gmail.com
Home page: http://www.clusterheadaches.org
- Vasculitis of the Central Nervous System
vasculitisoftheCNS@yahoogroups.com
None None None
Phone #: 770-978-5636
800 #: --
e-mail: cnsvsurvivor@aol.com
Home page: http://www.VasculitisoftheCNS@yahoogroups.com
|
|
