NORD's
Washington Office
 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
|
|
|
The National Organization for Rare Disorders (NORD) web site, its databases,
and the contents thereof are copyrighted by NORD. No part of the NORD web
site, databases, or the contents may be copied in any way, including but not
limited to the following: electronically downloading, storing in a retrieval
system, or redistributing for any commercial purposes without the express
written permission of NORD. Permission is hereby granted to print one hard
copy of the information on an individual disease for your personal use,
provided that such content is in no way modified, and the credit for the
source (NORD) and NORD’s copyright notice are included on the printed copy.
Any other electronic reproduction or other printed versions is strictly
prohibited.
The information in NORD's Rare Disease Database is for educational purposes only. It
should never be used for diagnostic or treatment purposes. If you have questions regarding
a medical condition, always seek the advice of your physician or other qualified health
professional. NORD's reports provide a brief overview of rare diseases. For more specific
information, we encourage you to contact your personal physician or the agencies listed as
"Resources" on this report.
Copyright 1987, 1989, 1999, 2000, 2004, 2007
Synonyms of Idiopathic Pulmonary Fibrosis
- Alveolocapillary block
- Cryptogenic Fibrosing Alveolitis
- Diffuse Fibrosing Alveolitis
- Fibrosing Alveolitis
- Hamman-Rich Syndrome
- Interstitial Diffuse Pulmonary Fibrosis
Disorder Subdivisions
General Discussion
Idiopathic pulmonary fibrosis is an inflammatory lung disorder of unknown origin (idiopathic) characterized by abnormal formation of fibrous tissue (fibrosis) between the tiny air sacs (alveoli) or ducts of the lungs. Coughing and rapid, shallow breathing occur with moderate exercise. The skin may appear slightly bluish (cyanotic) due to lack of circulating oxygen. Complications such as infection, emphysema or heart problems may develop.
Organizations related to Idiopathic Pulmonary Fibrosis
- American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: aarda@aarda.org
Home page: http://www.aarda.org/
- American Lung Association
61 Broadway, 6th Floor
New York NY 10006
Phone #: 212-315-8700
800 #: 800-586-4872
e-mail: N/A
Home page: http://www.lungusa.org
- AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: bandrews@autoimmunitycommunity.org
Home page: http://autoimmunitycommunity.org
- Autoimmune Information Network, Inc
PO Box 4121
Brick NJ 08723
Phone #: 732-664-9259
800 #: N/A
e-mail: autoimmunehelp@aol.com
Home page: http://www.aininc.org
- Coalition for Pulmonary Fibrosis
1659 Bramham Lane
Suite F, #227
San Jose CA 95118-5226
Phone #: 888-222-8541
800 #: 888-222-8541
e-mail: info@coalitionforpf.org
Home page: http://www.coalitionforpf.org
- European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg None D-79106
Phone #: +31- 73--6992965
800 #: N/A
e-mail: info@esid.org
Home page: http://www.esid.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- Global Fibrosis Foundation
5036 Dr. Phillips Boulevard
Suite 244
Orlando FL 32819
Phone #: 407-909-0753
800 #: 800-872-6874
e-mail: globalfibrosis@gmail.com
Home page: http://www.globalfibrosis.com
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- NIH/National Heart, Lung and Blood Institute
31 Center Drive MSC 2480
Building 31A Rm 4A16
Bethesda MD 20892-2480
Phone #: 301-592-8573
800 #: --
e-mail: nhlbiinfo@rover.nhlbi.nih.gov
Home page: http://www.nhlbi.nih.gov/
- Pulmonary Fibrosis Foundation
1332 N. Halsted
Suite 201
Chicago IL 60622
Phone #: 312-587-9272
800 #: N/A
e-mail: breathe@pulmonaryfibrosis.org
Home page: http://www.pulmonaryfibrosis.org
|
|
