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Copyright 1988, 1990, 1999, 2003
Synonyms of Incontinentia Pigmenti
- Bloch-Siemens Incontinentia Pigmenti Melanoblastosis Cutis Linearis
- Bloch-Siemens-Sulzberger Syndrome
- Bloch-Sulzberger Syndrome
- IP
- Pigmented Dermatosis, Siemens-Bloch type
Disorder Subdivisions
General Discussion
Incontinentia Pigmenti (IP) is a rare genetic dermatological disorder affecting the skin, hair, teeth, and central nervous system. Progressive skin changes occur in four stages, the first of which appears in early infancy or is present at birth. IP is inherited as an X-linked dominant trait.
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Organizations related to Incontinentia Pigmenti
- Ectodermal Dysplasia Society
108 Charlton Lane
Cheltenham
Glos None GL53 9EA
Phone #: +44- (0-) 1242 261332
800 #: N/A
e-mail: diana@ectodermaldysplasia.org
Home page: http://www.ectodermaldysplasia.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- Incontinentia Pigmenti International Foundation
30 East 72nd Street
Suite 16
New York NY 10021
Phone #: 212-452-1231
800 #: --
e-mail: ipif@ipif.org
Home page: http://www.medhelp.org/ipif/
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-997-4488
800 #: 888-663-4637
e-mail: Askus@marchofdimes.com
Home page: http://www.marchofdimes.com
- NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info
- National Foundation for Ectodermal Dysplasias
410 East Main Street
PO Box 114
Mascoutah IL 62258-0114
Phone #: 618-566-2020
800 #: --
e-mail: info@nfed.org
Home page: http://www.nfed.org
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