NORD's
Washington Office
 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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"Resources" on this report.
Copyright 1986, 1987, 1989, 1990, 1993, 1997, 1999, 2007
Synonyms of Laurence Moon Syndrome
- Adipogenital-Retinitis Pigmentosa Syndrome
- Laurence Syndrome
- LM Syndrome
Disorder Subdivisions
General Discussion
Laurence-Moon Syndrome is a rare inherited disorder characterized by diminished hormone production by the testes or ovaries (hypogonadism), progressive loss of vision (retinitis pigmentosa), mental retardation, and paralysis of the legs and lower part of the body accompanied by involuntary muscle contractions (spastic paraplegia). Confusion exists in the medical literature regarding the difference between Laurence-Moon Syndrome and Bardet-Biedl Syndrome. Some researchers believe that Bardet-Biedl Syndrome is a subdivision of Laurence-Moon Syndrome which they term "Laurence-Moon-Biedl Syndrome."
Organizations related to Laurence Moon Syndrome
- American Council of the Blind, Inc.
1155 15th Street
Suite 1004
Washington DC 20005
Phone #: 202-467-5081
800 #: 800-424-8666
e-mail: N/A
Home page: http://www.acb.org
- American Foundation for the Blind
11 Penn Plaza
Suite 300
New York NY 10001
Phone #: 212-502-7600
800 #: 800-232-5463
e-mail: afbinfo@afb.org
Home page: http://www.afb.org
- Blind Children's Fund
311 W. Broadway
Suite 1
Mt. Pleasant MI 48858
Phone #: 989-779-9966
800 #: --
e-mail: bcf@blindchildrensfund.org
Home page: http://www.blindchildrensfund.org
- Council of Families with Visual Impairment
1155 15th St. NW
Suite 1004
Washington DC 20005
Phone #: 202-465-5081
800 #: --
e-mail: info@acb.org
Home page: http://www.acb.org/
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-519-3194
800 #: 888-205-2311
e-mail: gardinfo@nih.gov
Home page: http://www.genome.gov/10000409
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-428-7100
800 #: 888-663-4637
e-mail: Askus@marchofdimes.com
Home page: http://www.marchofdimes.com
- National Association for Parents of Children with Visual Impairments (NAPVI)
P.O. Box 317
Watertown MA 02472
Phone #: 617-972-7441
800 #: 800-562-6265
e-mail: napvi@perkins.org
Home page: http://www.napvi.org
- National Association for Visually Handicapped
22 West 21st Street
New York NY 10010
Phone #: 212-889-3141
800 #: --
e-mail: staff@navh.org
Home page: http://www.navh.org
- National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
8A07
Bethesda MD 20892-2540
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: braininfo@ninds.nih.gov
Home page: http://www.ninds.nih.gov/
- Perkins School for the Blind
175 North Beacon St.
Watertown MA 02472
Phone #: 617-924-3434
800 #: N/A
e-mail: Info@Perkins.org
Home page: http://www.Perkins.org
- Prevent Blindness America
211 West Wacker Drive
Suite 1700
Chicago IL 60606
Phone #: 312-363-6001
800 #: 800-331-2020
e-mail: info@preventblindness.org
Home page: http://www.preventblindness.org
- The Arc (a national organization on mental retardation)
1010 Wayne Ave
Suite 650
Silver Spring MD 20910
Phone #: 301-565-3842
800 #: 800-433-5255
e-mail: info@thearc.org
Home page: http://www.thearc.org/
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