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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Copyright 1992, 1993, 1994, 1995, 1996, 1998, 2002
Synonyms of Lennox Gastaut Syndrome
Disorder Subdivisions
General Discussion
Lennox-Gastaut Syndrome (LGS) is a rare disorder that typically becomes apparent during infancy or early childhood. The disorder is characterized by frequent episodes of uncontrolled electrical disturbances in the brain (seizures) and, in many cases, abnormal delays in the acquisition of skills that require the coordination of mental and muscular activity (psychomotor retardation). Individuals with the disorder may experience several different types of seizures. Lennox-Gastaut Syndrome may be due to or occur in association with a number of different underlying disorders or conditions.
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Organizations related to Lennox Gastaut Syndrome
- Epilepsy Foundation
8301 Professional Place
Landover MD 20785
Phone #: 301-459-3700
800 #: 800-332-1000
e-mail: info@efa.org
Home page: http://www.epilepsyfoundation.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- Intractable Childhood Epilepsy Alliance (ICE)
PO Box 365
250 Lewisville-Vienna Road
Lewisville NC 27023
Phone #: 336-918-9440
800 #: N/A
e-mail: N/A
Home page: http://www.icepilepsy.org
- LGS Foundation, Inc.
PO Box 6948
New York NY 10150
Phone #: 718-374-3800
800 #: N/A
e-mail: christina@lgsfoundation.org
Home page: http://www.lgsfoundation.org
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
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