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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Copyright 1986, 1988, 1989, 1996, 2004
Synonyms of Lichen Sclerosus
- Csillag's Disease (Sclerosus)
- Guttate Morphea (Sclerosus)
- Guttate Scleroderma, Lichen Sclerosus Type
- Hallopeau I Disease
- Lichen Sclerosus et Atrophicus
- Von Zambusch Disease
- White-Spot Disease
Disorder Subdivisions
General Discussion
Lichen sclerosus is a chronic skin disorder that most commonly affects post-menopausal women. However, it is sometimes identified among pre-menopausal women, and, even more rarely, among males. When found in males, the disease is known as balanitis xerotica obliterans.
Lichen sclerosus is characterized by skin changes of the external genitalia (i.e., vulva, head of the penis), although other parts of the body may also be affected. Intense itching often accompanies attacks of lichen sclerosus. The disorder is not contagious nor is it a sexually transmitted disease. In the recent past, a genetic component for lichen sclerosus has been recognized. In addition, many clinical researchers believe that it is a disorder of the immunological system. The understanding of the causes of this disorder is still incomplete. Lichen sclerosus can develop concurrently with other conditions.
Organizations related to Lichen Sclerosus
- American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: aarda@aarda.org
Home page: http://www.aarda.org/
- AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: bandrews@autoimmunitycommunity.org
Home page: http://autoimmunitycommunity.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- International Scleroderma Network
7455 France Ave So #266
Edina MN 55435-4702
Phone #: 952-583-5735
800 #: 800-564-7099
e-mail: isn@sclero.org
Home page: http://www.sclero.org
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info
- National Vulvodynia Association
P.O. Box 4491
Silver Spring MD 20914-4491
Phone #: 301-299-0775
800 #: --
e-mail: mate@nva.org
Home page: http://www.nva.org
- National Women's Health Network
514 10th Street NW
Suite 400
Washington D.C. 20004
Phone #: 202-628-7814
800 #: --
e-mail: nwhn@nwhn.org
Home page: http://www.womenshealthnetwork.org
- National Women's Health Resource Center
157 Broad Street
Suite 315
Red Bank NJ 07701
Phone #: 732-530-3425
800 #: 877-986-9472
e-mail: mchin@healthywomen.org
Home page: http://www.healthywomen.org
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