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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Copyright 1984, 1985, 1987, 1988, 1990, 1992, 1993, 1994, 1995, 1996, 1997, 1998. 1999, 2000, 2002, 2003, 2004
Synonyms of Lupus
- Disseminated lupus erythematosus
- Lupus erythematosus
Disorder Subdivisions
- Discoid lupus erythematosus (DLE)
- Drug-induced lupus erythematosus
- Systemic lupus erythematosus (SLE_
General Discussion
Lupus is a chronic, inflammatory autoimmune disorder affecting the connective tissue. In autoimmune disorders, the body's own immune system attacks healthy cells and tissues causing inflammation and malfunction of various organ systems. In lupus, the organ systems most often involved include the skin, kidneys, blood and joints. Many different symptoms are associated with lupus, and most affected individuals do not experience all of the symptoms. In some cases, lupus may be a mild disorder affecting only a few organ systems. In other cases, it may result in serious complications.
There are at least three forms of lupus: the classic form, systemic lupus erythematosus; a form that only affects the skin, discoid lupus erythematosus; and drug-induced lupus erythematosus. The term lupus is most often used to denote systemic lupus erythematosus.
Organizations related to Lupus
- APS Foundation of America, Inc
PO Box 801
La Crosse WI 54602-0801
Phone #: 608-782-2626
800 #: N/A
e-mail: apsfa@apsfa.org
Home page: http://www.apsfa.org
- American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: aarda@aarda.org
Home page: http://www.aarda.org/
- American Juvenile Arthritis Organization
Arthritis Foundation, National Office
1330 West Peachtree Street, Suite 100
Atlanta GA 30309
Phone #: 404-965-7624
800 #: 800-568-4045
e-mail: help@arthritis.org
Home page: http://www.arthritis.org
- Arthritis Foundation
P.O. Box 7669
Atlanta GA 30357-0669
Phone #: 404-965-7627
800 #: 800-283-7800
e-mail: arthritisfoundation@arthritis.org
Home page: http://www.arthritis.org
- Australasian Blistering Diseases Foundation
St. George Hospital
Department of Dermatology
Gray Street
KOGARAH NSW 2217
None None None
Phone #: 02 -911-3 2543
800 #: N/A
e-mail: N/A
Home page: N/A
- AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: moderator@autoimmunitycommunity.org
Home page: http://www.autoimmunitycommunity.org
- Autoimmune Information Network, Inc
PO Box 4121
Brick NJ 08723
Phone #: 732-664-9259
800 #: N/A
e-mail: autoimmunehelp@aol.com
Home page: http://www.aininc.org
- CNS Vasculitis Foundation
9930 Morningfield
San Antonio TX 78250-3743
Phone #: 210-523-8234
800 #: N/A
e-mail: info@cnsvf.org
Home page: http://www.cnsvf.org
- Cicatricial Alopecia Research Foundation (C.A.R.F.)
PO Box 64158
Los Angeles CA 90064
Phone #: 310-475-2419
800 #: N/A
e-mail: info@carfintl.org
Home page: http://www.carfintl.org
- Cogan's Contact Network
PO Box 145
Freehold NJ 07728-0145
Phone #: 732-409-1031
800 #: N/A
e-mail: N/A
Home page: http://www.coganssyndrome.info/
- Erythema Nodosum Yahoo Support Group
None
None None None
Phone #: N/A
800 #: N/A
e-mail: N/A
Home page: http://health.groups.yahoo.com/group/erythema_nodosum_Group/
- European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg None D-79106
Phone #: +31- 73--6992965
800 #: N/A
e-mail: info@esid.org
Home page: http://www.esid.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- Jack Miller Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030
Chicago IL 60637
Phone #: 773-702-5659
800 #: N/A
e-mail: N/A
Home page: http://millercenter.uchicago.edu
- Kidney & Urology Foundation of America, Inc.
152 Madison Ave.
Suite 201
New York NY 10016
Phone #: 212-629-9770
800 #: 800-633-6628
e-mail: info@kidneyurology.org
Home page: http://www.kidneyurology.org
- Lupus Canada
3555 14th Avenue, Unit #3,
Markham
Ontario None L3R 0H5
Phone #: (90-5) -513-0004
800 #: (80-0) -661-1468
e-mail: info@lupuscanada.org
Home page: http://www.lupuscanada.org
- Lupus Foundation of America, Inc.
2000 L Street NW
Suite 710
Washington DC 20036
Phone #: 202-349-1155
800 #: 800-558-0121
e-mail: info@lupus.org
Home page: http://www.lupus.org
- Lupus Society of Alberta
Suite 200, 1301 - 8 St. SW
Calgary
Alberta
None None T2R 1B7
Phone #: 403--22-8-7956
800 #: 888--24-2-9182
e-mail: lupuslsa@shaw.ca
Home page: http://www.lupus.ab.ca
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info
- Vasculitis of the Central Nervous System
vasculitisoftheCNS@yahoogroups.com
None None None
Phone #: 770-978-5636
800 #: --
e-mail: cnsvsurvivor@aol.com
Home page: http://www.VasculitisoftheCNS@yahoogroups.com
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