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Copyright 1987, 1990, 1992, 1994, 1996, 1998, 1999, 2002, 2004, 2007
Synonyms of Mastocytosis
- Systemic Mast Cell Disease
- Systemic Mastocytosis
- Urticaria pigmentosa
Disorder Subdivisions
- Aggressive Systemic Mastocytosis
- Cutaneous Mastocytosis
- Indolent Systemic Mastocytosis
- Mast Cell Leukemia
- Mast Cell Sarcoma/Extracutaneous Mastocytoma
- Mastocytosis with an Associated Hematological Disorder
General Discussion
Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells in skin, bone marrow, and internal organs such as the liver, spleen and lymph nodes. Cases beginning during adulthood tend to involve the inner organs in addition to the skin whereas, during childhood, the condition is often marked by skin manifestations with minimal or no organ involvement. When there is evidence of bone marrow or internal organ involvement, the disease is referred to as "systemic mastocytosis".
Although the majority of cases follow an indolent course, some patients may have evidence of a blood disorder such as a myelodysplastic or myeloproliferative disorder at the time of diagnosis. The course and prognosis of mastocytosis in these patients are determined by this associated hematologic disorder. More aggressive forms of mastocytosis and mast cell leukemias are very rarely encountered.
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Organizations related to Mastocytosis
- CMPD Education Foundation
233 S. Wacker Drive, Suite 375
Chicago IL 60606
Phone #: 312-683-7243
800 #: N/A
e-mail: ian.sweet@homemail.com.au
Home page: http://www.mpdinfo.org
- Cancer.Net
American Society of Clinical Oncology
2318 Mill Road
Suite 800
Alexandria VA 22314
Phone #: 571-483-1780
800 #: 888-651-3038
e-mail: contactus@cancer.net
Home page: http://www.cancer.net/patient
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- Mastocytosis Society, Inc.
P.O. Box 731
Brenham TX 77834
Phone #: 413-862-4556
800 #: --
e-mail: info@tmsforacure.org
Home page: http://www.tmsforacure.org/
- Mastokids
P. O. Box 253
Blue Point NY 11715
Phone #: 678-947-5455
800 #: N/A
e-mail: listmom@mastokids.org
Home page: http://www.mastokids.org
- NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info
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