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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Copyright 2006
Synonyms of Melorheostosis
Disorder Subdivisions
General Discussion
Melorheostosis is a rare and progressive disease characterized by thickening (hyperostosis) of the outer layers of bone (cortical bone). Melorheostosis affects both bone and soft tissue growth and development. While the disorder is benign, it often results in severe functional limitation; extensive pain; malformed or immobilized muscles, tendons or ligaments; and limb, hand or foot deformity.
Organizations related to Melorheostosis
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- Melorheostosis Association
410 East 50th Street
New York NY 10022
Phone #: 517-521-4459
800 #: N/A
e-mail: kathleen@melorheostosis.org
Home page: http://www.melorheostosis.org
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