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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Copyright 1986, 1988, 1990, 1993, 1994, 1996, 1997, 1998, 1999, 2000, 2002, 2003, 2005, 2009
Synonyms of Narcolepsy
- Gelineau's Syndrome
- Narcoleptic syndrome
- Paroxysmal Sleep
- Sleep Epilepsy
Disorder Subdivisions
General Discussion
Narcolepsy is a rare disorder characterized by chronic, excessive attacks of drowsiness during the day, sudden extreme muscle weakness (cataplexy), hallucinations, paralysis while sleeping, and disrupted sleep during the night. Attacks of drowsiness may persist only a few minutes or last for hours, and may vary in frequency from a few incidents to several during a single day. Although the exact cause of narcolepsy is not known, many researchers suspect that genetic factors play a role in the development of the disorder.
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Organizations related to Narcolepsy
- American Sleep Disorders Association
1610 14th Street NW
Suite 300
Rochester MN 55901
Phone #: 507-287-6006
800 #: --
e-mail: asda@millcomm.com
Home page: N/A
- Center for Narcolepsy Research
College of Nursing (M/C 802)
The University of Illinois at Chicago
845 South Damen Avenue
Room 215
Chicago IL 60612-7350
Phone #: 312-996-5176
800 #: --
e-mail: narcolep@listserve.uic.edu
Home page: http://www.uic.edu/depts/cnr/cnrright.htm
- Center for Research in Sleep Disorders
1275 East Kemper Rd.
Cincinnati OH 45246
Phone #: 513-671-3101
800 #: --
e-mail: ggaz@tristatesleep.com
Home page: N/A
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- MedicAlert Foundation International
2323 Colorado Avenue
Turlock CA 95382
Phone #: 209-669-2401
800 #: 888-633-4298
e-mail: Inquiries@medicalert.org
Home page: http://www.medicalert.org
- Narcolepsy Institute
Montefiore Medical Center
111 East 210th Street
Bronx NY 10467
Phone #: 718-920-6799
800 #: --
e-mail: MGoswami@NarcolepsyInstitute.org
Home page: http://www.narcolepsyinstitute.org
- Narcolepsy Network, Inc.
110 Ripple Lane
North Kingstown RI 02852
Phone #: 401-667-2523
800 #: 888-292-6522
e-mail: narnet@narcolepsynetwork.org
Home page: http://www.narcolepsynetwork.org
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
- National Sleep Foundation
1522 K Street
Suite 500
Washington D.C. 20005
Phone #: 202-347-3471
800 #: --
e-mail: nsf@sleepfoundation.org
Home page: http://www.sleepfoundation.org
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