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"Resources" on this report.
Copyright 1990, 1997, 2005, 2008, 2009
NORD is very grateful to Michael R. Pranzatelli, MD, Professor of Neurology and Pediatrics, Chair, Child & Adolescent Neurology; Director, National Pediatric Myoclonus Center; Southern Illinois University School of Medicine, Department of Neurology, for assistance in the preparation of this report.
Synonyms of Opsoclonus-Myoclonus Syndrome
- Dancing Eyes-Dancing Feet
- Kinsbourne Syndrome
- Myoclonic Encephalopathy, Kinsbourne Type
- Opsoclonic Encephalopathy
Disorder Subdivisions
General Discussion
Opsoclonus-myoclonus syndrome is a rare movement disorder. It is characterized by associated ocular, behavioral, sleep, and language disturbances. The onset is usually abrupt, often severe, and can become chronic.
Organizations related to Opsoclonus-Myoclonus Syndrome
- Dancing Eye Syndrome Support Trust
78 Quantock Road
Worthing
West Sussex Intl BN13 2HQ
Phone #: 019-25 -654654
800 #: --
e-mail: support@dancingeyes.org.uk
Home page: http://www.dancingeyes.org.uk
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
- National Pediatric Myoclonus Center
SIU School of Medicine
Dept. of Neurology, Div. of Ped. Neurology
PO Box 19643
Springfield IL 62794-9643
Phone #: 217-545-7635
800 #: --
e-mail: oms@siumed.edu
Home page: http://www.omsusa.org
- Opsoclonus-Myoclonus Support Network, Inc.
2116 Casa Linda Dr.
West Covina CA 91791
Phone #: 626-315-8125
800 #: --
e-mail: sandragreenberg@hotmail.com
Home page: http://www.omsupportnetwork.org
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