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"Resources" on this report.
Copyright 1989, 1996, 2004
Synonyms of Pierre Robin Sequence
- Glossoptosis, Micrognathia, and Cleft Palate
- Pierre Robin
- Pierre Robin Anomalad
- Pierre Robin Complex
- Pierre Robin Deformity
- Pierre Robin Malformation Sequence
- Pierre Robin Syndrome
- Pierre Robin Triad
- Robin Anomalad
- Robin Complex
- Robin Syndrome
Disorder Subdivisions
General Discussion
Pierre Robin sequence is characterized by an unusually small lower jaw (micrognathia) and downward displacement of the tongue (glossoptosis). Some infants also have an abnormal opening in the roof of the mouth (cleft palate); both the soft and hard palate can be affected.
Organizations related to Pierre Robin Sequence
- Birth Defect Research for Children, Inc.
800 Celebration Ave, Suite 225
Orlando FL 34747
Phone #: 407-566-8304
800 #: --
e-mail: staff@birthdefects.org
Home page: http://www.birthdefects.org
- Children's Craniofacial Association
13140 Coit Road
Suite 517
Dallas TX 75240
Phone #: 214-570-9099
800 #: 800-535-3643
e-mail: contactCCA@ccakids.com
Home page: http://www.ccakids.com
- FACES: The National Craniofacial Association
P. O. Box 11082
Chattanooga TN 37401
Phone #: 423-266-1632
800 #: 800-332-2373
e-mail: faces@faces-cranio.org
Home page: http://www.faces-cranio.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto CA 94303
Phone #: 650-462-3143
800 #: 877-735-2929
e-mail: info@letthemhear.org
Home page: http://www.letthemhear.org
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- Pierre Robin Network
3604 Biscayne
Quincy IL 62305
Phone #: 217-224-0698
800 #: --
e-mail: help@pierrerobin.org
Home page: http://www.pierrerobin.org
- Prescription Parents
Prescription Parent, Inc.
P.O. Box 920554
Needham MA 02492
Phone #: 617-499-1936
800 #: --
e-mail: info@prescriptionparents.org
Home page: http://www.prescriptionparents.com
- Wide Smiles
P.O. Box 5153
Stockton CA 95205-0153
Phone #: 209-942-2812
800 #: --
e-mail: josmiles@yahoo.com
Home page: http://www.widesmiles2.org/
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