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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Copyright 1989, 1992, 2000, 2001, 2002, 2004, 2007
Synonyms of Primary Lateral Sclerosis
- Central Motor Neuron Disease
- PLS
Disorder Subdivisions
General Discussion
Primary lateral sclerosis (PLS) is a rare, neuromuscular disorder that affects the central motor neurons and is characterized by painless but progressive weakness and stiffness of the muscles of the legs. Such weakness may progress to affect the arms and the muscles at the base of the brain (bulbar muscles). Less frequently, the muscles of the face are affected. In most cases, the disorder affects adults during midlife. The exact cause of primary lateral sclerosis is unknown.
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Organizations related to Primary Lateral Sclerosis
- Amyotrophic Lateral Sclerosis Association
27001 Agoura Road
Suite 250
Calabasas Hills CA 91301-5104
Phone #: 818-880-9007
800 #: 800-782-4747
e-mail: als@alsa-national.org
Home page: http://www.alsa.org
- Connecticut Connection
530 Silas Deane Highway (Rt. 99)
Wethersfield CT 06109
Phone #: 860-529-8006
800 #: --
e-mail: hartford@ctconnection.com
Home page: http://www.ctconnection.com/
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- International Alliance of ALS/MND Associations
P.O. Box 246
Northampton None NN1 2PR
Phone #: 44 -160-4 611821
800 #: N/A
e-mail: alliance@alsmndalliance.org
Home page: http://www.alsmndalliance.org
- Les Turner Amyotrophic Lateral Sclerosis Foundation, Ltd.
5550 W. Touhy Avenue, Suite 302
Skokie IL 60077-3254
Phone #: 847-679-3311
800 #: 888-257-1107
e-mail: info@lesturnerals.org
Home page: http://www.lesturnerals.org
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Motor Neurone Disease Association
P.O. Box 246
Northampton Intl NN1 2PR
Phone #: 44 -160-4 250505
800 #: --
e-mail: enquiries@mndassociation.org
Home page: http://www.mndassociation.org
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
- Spastic Paraplegia Foundation
212 Farm Rd
Woburn MA Sherborn
Phone #: N/A
800 #: 877-773-4483
e-mail: info@sp-foundation.org
Home page: http://sp-foundation.org
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