NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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"Resources" on this report.
Copyright 1991, 1996, 1997, 1999, 2002, 2008
NORD is very grateful to Paul H. Sugarbaker, MD, FACS, FRCS, Director, Program in Peritoneal Surface Malignancy, Washington Hospital Center, for assistance in the preparation of this report.
Synonyms of Pseudomyxoma Peritonei
- Colloid Carcinoma
- Disseminated Peritoneal Adenomucinosis (DPAM)
- Malignant Appendiceal Tumor
- Malignant Large Bowel Cystadenocarcinoma
- Malignant Large Bowel Peritoneal Carcinomatosis
- Malignant Large Bowel Tumor
- Mucinous Cyst Adenocarcinoma
- Mucinous Cystadenoma
- Peritoneal Carcinomatosis
- Peritoneal Mucinous Carcinomatosis (PMCA)
- Pseudomyxoma Ovarii
Disorder Subdivisions
General Discussion Pseudomyxoma Peritonei is a rare malignant growth characterized by the progressive accumulation of mucus-secreting (mucinous) tumor cells within the abdomen and pelvis. The disorder develops after a small growth (polyp) located within the appendix bursts through the wall of the appendix, and spreads mucus-producing tumor cells throughout the surrounding surfaces (e.g., the membrane that lines the abdominal cavity [peritoneum]). As mucinous tumor cells accumulate, the abdominal area becomes swollen and digestive (gastrointestinal) function becomes impaired. Pseudomyxoma Peritonei develops at a variable rate, but may grow at a slower rate (indolent) than other malignancies within the abdomen. .
Organizations related to Pseudomyxoma Peritonei
- American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta GA 30329
Phone #: 404-320-3333
800 #: 800-227-2345
e-mail: N/A
Home page: http://www.cancer.org
- CORE
3 St. Andrews Place
London None NW1 4LB
Phone #: 020- 74-86 0341
800 #: N/A
e-mail: info@corecharity.org.uk
Home page: http://www.corecharity.org.uk
- Cancer Support Community
919 18th Street N.W.
Suite 54 Washington DC 20006
Phone #: 202-659-9709
800 #: 888-793-9355
e-mail: N/A
Home page: www.cancersupportcommunity.org
- Friends of Cancer Research
2231 Crystal Drive
Suite 200 Arlington VA 22202
Phone #: 703-302-1503
800 #: N/A
e-mail: info@focr.org
Home page: http://www.focr.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- Lance Armstrong Foundation
2201 E. Sixth Street
Austin TX 78702
Phone #: 512-236-8820
800 #: 877-236-8820
e-mail: media@livestrong.org
Home page: http://www.livestrong.org
- National Cancer Institute
6116 Executive Blvd, MSC 8322, Room 3036A
Bethesda MD 20892-8322
Phone #: 301-435-3848
800 #: 800-422-6237
e-mail: cancergovstaff@mail.nih.gov
Home page: http://www.cancer.gov
- PMP Pals' Network
P.O. Box 6484
Salinas CA 93912
Phone #: 831-424-4545
800 #: --
e-mail: pmppals@yahoo.com
Home page: http://www.pmppals.org
- PMP Research Foundation, Inc.
6415 Granger Rd.
Suite 200 Independence OH 44131
Phone #: 216-986-7010
800 #: N/A
e-mail: info@pmpcure.org
Home page: http://www.pmpcure.org
- Rare Cancer Alliance
1649 North Pacana Way
Green Valley AZ 85614
Phone #: 520-625-5495
800 #: --
e-mail: sharon.lane@rare-cancer.org
Home page: http://www.rare-cancer.org
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