NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
|
|
|
The National Organization for Rare Disorders (NORD) web site, its databases,
and the contents thereof are copyrighted by NORD. No part of the NORD web
site, databases, or the contents may be copied in any way, including but not
limited to the following: electronically downloading, storing in a retrieval
system, or redistributing for any commercial purposes without the express
written permission of NORD. Permission is hereby granted to print one hard
copy of the information on an individual disease for your personal use,
provided that such content is in no way modified, and the credit for the
source (NORD) and NORD’s copyright notice are included on the printed copy.
Any other electronic reproduction or other printed versions is strictly
prohibited.
The information in NORD's Rare Disease Database is for educational purposes only. It
should never be used for diagnostic or treatment purposes. If you have questions regarding
a medical condition, always seek the advice of your physician or other qualified health
professional. NORD's reports provide a brief overview of rare diseases. For more specific
information, we encourage you to contact your personal physician or the agencies listed as
"Resources" on this report.
Copyright 1988, 1989, 2004
Synonyms of Retinoschisis
- Congenital Retinal Cyst
- Congenital Vascular Veils in the Retina
- Giant Cyst of the Retina
- Vitreoretinal Dystrophy
Disorder Subdivisions
- Blessig Cysts
- Congenital Retinoschisis
- Familial Foveal Retinoschisis
- Iwanoff Cysts
- Peripheral Cystoid Degeneration of the Retina
- Retinoschisis, Juvenile
- Retinoschisis, Senile
- Retinoschisis, Typical
General Discussion Retinoschisis means splitting of the eye's retina into two layers. There are two forms of this disorder. The most common is an acquired form that affects both men and women. It usually occurs in middle age or beyond, although it can occur earlier, and it is sometimes known as senile retinoschisis. The other form is present at birth (congenital) and affects mostly boys and young men. It is known as juvenile, X-linked retinoschisis.
The disorder is characterized by a slow, progressive loss of parts of the field of vision corresponding to the areas of the retina that have become split. Either form may be associated with the development of saclike blisters (cysts) in the retina.
.
Organizations related to Retinoschisis
- American Council of the Blind
2200 Wilson Boulevard, Suite 650
Arlington VA 22201
Phone #: 202-467-5081
800 #: 800-424-8666
e-mail: mailman@acb.org
Home page: http://www.acb.org/
- American Council of the Blind, Inc.
2200 Wilson Boulevard, Suite 650
Arlington VA 22201
Phone #: 202-467-5081
800 #: 800-424-8666
e-mail: N/A
Home page: http://www.acb.org
- American Foundation for the Blind
2 Penn Plaza, Suite 1102
New York NY 10121
Phone #: 212-502-7600
800 #: 800-232-5463
e-mail: afbinfo@afb.net
Home page: http://www.afb.org
- Association for Macular Diseases, Inc.
210 East 64th Street, 8th Floor
New York NY 10065
Phone #: 212-605-3719
800 #: --
e-mail: association@retinal-research.org
Home page: http://www.macula.org/association/about.html
- Blind Children's Fund
201 S. University Avenue
Mt. Pleasant MI 48858
Phone #: 989-779-9966
800 #: --
e-mail: bcf@blindchildrensfund.org
Home page: http://www.blindchildrensfund.org
- Foundation Fighting Blindness
11435 Cronhill Drive
Owings Mills MD 21117-2220
Phone #: 410-568-0150
800 #: 800-683-5555
e-mail: info@blindness.org
Home page: http://www.fightblindness.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- MD Support - The Eyes of the Macular Degeneration Community
3600 Blue Ridge Blvd
Grandview MO 64030
Phone #: 816-761-7080
800 #: N/A
e-mail: director@mdsupport.org
Home page: http://www.mdsupport.org
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- NIH/National Eye Institute
Building 31 Rm 6A32
31 Center Dr MSC 2510 Bethesda MD 20892-2510
Phone #: 301-496-5248
800 #: --
e-mail: 2020@nei.nih.gov
Home page: http://www.nei.nih.gov/
- National Association for Parents of Children with Visual Impairments (NAPVI)
P.O. Box 317
Watertown MA 02471
Phone #: 617-972-7441
800 #: 800-562-6265
e-mail: napvi@perkins.org
Home page: http://www.napvi.org
- National Association for Visually Handicapped
22 West 21st Street
New York NY 10010
Phone #: 212-889-3141
800 #: --
e-mail: staff@navh.org
Home page: http://www.navh.org
- ROPARD:The Association for Retinopathy of Prematurity and Related Diseases
P.O.Box 250425
Franklin MI 48025
Phone #: 248-549-2671
800 #: 800-788-2020
e-mail: ropard@yahoo.com
Home page: http://www.ropard.org
- Retinitis Pigmentosa International
P.O. Box 900
Woodland Hills CA 91365
Phone #: 818-992-0500
800 #: 800-344-4877
e-mail: info@international.org
Home page: http://www.rpinternational.org
|
|