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Copyright 1984, 1985, 1987, 1989, 1990, 1992, 1993, 1994, 1995 , 1996, 1997, 1998, 1999, 2000, 2001, 2002, 2003, 2006
Synonyms of Sickle Cell Disease
- Sickle Cell Anemia
- Sickle Cell Trait
Disorder Subdivisions
- Sickle Cell-Hemoglobin C Disease
- Sickle Cell-Hemoglobin D Disease
- Sickle Cell-Thalassemia Disease
General Discussion
Sickle cell disease is a rare inherited blood disorder. It is characterized by the presence of sickle or crescent shaped red blood cells (erythrocytes) in the bloodstream. These abnormally-shaped cells become rigid and lodge themselves in the very tiny blood vessels (capillaries) of the peripheral blood system (blood vessels outside of the heart). The capillaries become clogged, preventing the normal flow of oxygen to tissues. Common symptoms associated with sickle cell disease include chest pain, frequent infections, yellowing of the skin (jaundice), and low levels of circulating red blood cells (anemia). Sickle cell disease has several recognized forms including sickle cell anemia, sickle cell hemoglobin C disease and sickle cell thalassemia disease. Sickle cell disease is inherited as an autosomal recessive trait.
Organizations related to Sickle Cell Disease
- Anemia Institute for Research and Education
151 Bloor Street West
Suite 600
Toronto, Ontario None M5S 1S4
Phone #: 416--96-9-7431
800 #: 877--99-2-6364
e-mail: info@anemiainstitute.org
Home page: http://www.anemiainstitute.org
- Cochrane Cystic Fibrosis and Genetic Disorders Group
Institute of Child Health, University of Liverpool
Alder Hey Children's NHS Foundation Trust
Liverpool None L12 2 AP
Phone #: +44- (0-) 151 252 5696
800 #: --
e-mail: nikkij@liverpool.ac.uk
Home page: http://www.cfgd.cochrane.org/en/index.html
- Cooley's Anemia Foundation, Inc.
330 Seventh Avenue, #900
New York NY 10001
Phone #: 212-279-8090
800 #: 800-522-7222
e-mail: info@cooleysanemia.org
Home page: http://www.cooleysanemia.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-997-4488
800 #: 888-663-4637
e-mail: Askus@marchofdimes.com
Home page: http://www.marchofdimes.com
- NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda MD 20824-0105
Phone #: 301-592-8573
800 #: --
e-mail: nhlbiinfo@rover.nhlbi.nih.gov
Home page: N/A
- Sickle Cell Association of Ontario
3199 Bathurst Street
Suite 202
Toronto
Ontario None M6A 2B2
Phone #: 416-789-2855
800 #: --
e-mail: sicklecell@look.ca
Home page: http://www.sicklecellontario.com
- Sickle Cell Awareness Group of Ontario (SCAGO)
1280 Finch Ave W, Suite 517
Toronto
Ontario None M9M 2Z3
Phone #: (41-6) -745-4267
800 #: N/A
e-mail: info@sicklecellanemia.ca
Home page: http://sicklecellanemia.ca/index.php
- Sickle Cell Disease Association of America, Inc.
231 East Baltimore Stree
Suite 800
Baltimore MD 21202
Phone #: 410-528-1555
800 #: 800-421-8453
e-mail: scdaa@sicklecelldisease.org
Home page: http://www.sicklecelldisease.org
- Sickle Cell Disease Association of Piedmont
1102 East Market Street
P.O. Box 20964
Greensboro NC 27420
Phone #: 336-274-1507
800 #: 800-733-8297
e-mail: scdap@scdap.org
Home page: http://www.scdap.org
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