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Copyright 1987, 1989, 1996, 1998, 1999, 2006, 2007
Synonyms of Syringomyelia
- Hydromyelia
- Morvan Disease
- Spinal Cord Cyst
- Syringohydromyelia
Disorder Subdivisions
General Discussion
Syringomyelia is a neurological disorder characterized by the formation of a fluid-filled cyst (syrinx) within the spinal cord. This cyst may, for unknown reasons, expand during adolescence or the young adult years, destroying the center of the spinal cord as it does.
As the syrinx expands, it affects the nerves that stimulate the patient’s legs, arms, back and shoulders. In turn, the affected individual may feel considerable pain and weakness, and may lose the ability to distinguish hot from cold objects. The combination of symptoms and signs may vary considerably from person to person, depending on where in the spine the syrinx is located and how much it expands over time. Often, the symptoms develop slowly. Unless the condition is treated surgically, it may lead to neurological deficits and chronic, intense pain.
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Organizations related to Syringomyelia
- American Syringomyelia & Chiari Alliance Project Inc.
300 N. Green Street, Suite 412
PO Box 1586
Longview TX 75606-1586
Phone #: 903-236-7079
800 #: 800-272-7282
e-mail: info@asap.org
Home page: http://www.asap.org
- Canadian Syringomyelia Network
69 Penny Crescent
Markham
Ontario None L3P 5X7
Phone #: (90-5) -471-8278
800 #: --
e-mail: barb@csn.ca
Home page: http://www.csn.ca
- Chiari & Syringomyelia Foundation (CSF)
290 Broadhollow Road, Suite 210E
Melville NY 11747
Phone #: 516-228-3565
800 #: N/A
e-mail: N/A
Home page: http://www.CSFinfo.org
- Christopher Reeve Paralysis Foundation
636 Morris Turnpike, Suite 3A
Short Hills NJ 07078
Phone #: 973-379-2690
800 #: 800-225-0292
e-mail: prc@ChristopherReeve.org
Home page: http://www.christopherreeve.org
- Christopher S. Burton Syringomyelia Foundation, Inc.
P.O. Box 100335
Fort Lauderdale FL 33310-0335
Phone #: 954-727-5137
800 #: N/A
e-mail: info@thesmfoundation.org
Home page: http://www.thesmfoundation.org
- Conquer Chiari
320 Osprey Court
Wexford PA 15090
Phone #: 724-940-0116
800 #: N/A
e-mail: director@conquerchiari.org
Home page: http://www.conquerchiari.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- World Arnold Chiari Malformation Association
31 Newtown Woods Road
Newtown Square PA 19073
Phone #: 610-353-4737
800 #: N/A
e-mail: chiari-owner@yahoogroups.com
Home page: http://www.wacma.com
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