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 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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"Resources" on this report.
Copyright 1984, 1985, 1986, 1987, 1988, 1989, 1990, 1992, 1994, 1996, 1997, 1998, 1999, 2000, 2002, 2005, 2007
Synonyms of Tourette Syndrome
- Chronic Motor Tic
- Chronic Multiple Tics
- Gilles de la Tourette's disease
- Gilles de la Tourette's syndrome
- GTS
- Habit Spasms
- Maladie de Tics
- Paulitis
- Tics
- Tourette's disorder
- TS
Disorder Subdivisions
General Discussion
Tourette Syndrome is a hereditary neurological movement disorder that is characterized by repetitive motor and vocal tics. Symptoms may include involuntary movements of the extremities, shoulders, and face accompanied by uncontrollable sounds and, in some cases, inappropriate words. Tourette Syndrome is neither a progressive nor degenerative disorder; rather, symptoms tend to be variable and follow a chronic waxing and waning course throughout an otherwise normal life span. The specific symptoms associated with Tourette Syndrome often vary greatly from case to case. The exact cause of Tourette Syndrome is unknown.
Organizations related to Tourette Syndrome
- Child Neurology Foundation
2000 West 98th Street
Bloomington MN 55431
Phone #: 952-641-6100
800 #: 800-263-5430
e-mail: jstone@childneurologyfoundation.org
Home page: http://www.childneurologyfoundation.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
- New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
Suite 937
Milwaukee WI 53202
Phone #: 414-299-0124
800 #: N/A
e-mail: horizons@new-horizons.org
Home page: http://www.new-horizons.org
- Sjældne Diagnoser / Rare Disorders Denmark
Frederiksholms Kanal 2, 3rd Floor
Copenhagen K None 1220
Phone #: 45 -33 -14 00 10
800 #: N/A
e-mail: mail@sjaeldnediagnoser
Home page: http://www.raredisorders.dk
- Tourette Syndrome Association, Inc.
42-40 Bell Boulevard
Suite 205
Bayside NY 11361-2820
Phone #: 718-224-2999
800 #: 888-486-8738
e-mail: ts@tsa-usa.org
Home page: http://www.tsa-usa.org
- Tourette Syndrome Foundation of Canada
5945 Airport Rd - Suite #195
Mississauga, Ontario
Ontario None L4V 1R9
Phone #: 905-673--2255
800 #: (80-0) -361-3120
e-mail: tsfc@tourette.ca
Home page: http://www.tourette.ca
- WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York NY 10024
Phone #: 212-875-8312
800 #: N/A
e-mail: wemove@wemove.org
Home page: http://www.wemove.org
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