Policy Statement NORD and other patient advocacy groups send letter to CMS on Georgia SBE Blueprint Letter
Policy Statement Coalition letter from over 200 patient organizations imploring Congress to maintain the Orphan Drug Tax Credit **Updated letter as of November 10**
News NORD and Other Patient Advocacy Groups Issue Letter on Lack of Clear COVID-19 Vaccination Prioritization Guidance to the States for Rare Disease Patients
News Letter from NORD to Majority Leader Mitch McConnell and Minority Leader Chuck Schumer in support of Alex Azar’s candidacy
News Protecting Patients and Telehealth Access: Over 230 National Organizations Urge Governors Across the Country to Maintain and Expand Licensure Flexibilities Throughout Federal Public Health Emergency
News NORD Publishes New Rare Disease Report on Retinal Vasculopathy with Cerebral Leukodystrophy (RVCL)
Policy Statement NORD sends letter to Colorado Prescription Drug Affordability Board regarding Senate Bill 21-175
Policy Statement NORD and other patient advocacy groups send letter to Secretary Becerra concerning Essential Health Benefits
Policy Statement NORD and the Medical Nutrition Equity Coalition sends letter to Senate leadership to include the MNEA in the end-of-year legislative package
Policy Statement NORD submits letter of support to the PA Majority Leader in support of Senate Bill 225 on step therapy reform
Policy Statement NORD sends letter with the All Copays Count Coalition to CMS to address copay accumulator adjustment policies in the 2024 Notice of Benefit and Payment Parameters
Policy Statement NORD and 109 organizations send letter to Senate Finance and House Energy and Commerce in support of the Accelerating Kids’ Access to Care Act
Policy Statement NORD and 24 organizations send letter to Governor Newsom urging the passage of SB 912