The National Organization for Rare Disorders (NORD)


Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

Ending the Medicare Waiting Period

Senator Jeff Bingaman (D-NM) has introduced a bill called Ending the Medicare Disability Waiting Period Act of 2005 (S. 1217 and H.R. 2869). The bill would, over 10 years, completely phase out the two-year waiting period that Americans with disabilities must endure before receiving Medicare coverage. The legislation also creates a process by which the waiting period can be waived for people with life-threatening illnesses.

NORD is urging its members to contact their U.S. Senators and Representatives to ask them to cosponsor the Ending the Medicare Waiting Period Act of 2005. If you do not know the names of your congressional representatives, scroll down to the "Contact Your Congressperson" link on this page. If you need additional help, contact Diane Dorman in NORD's Washington Office at ddorman@rarediseases.org. (Details)

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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Volunteers in Public Policy

You can help NORD provide advocacy for rare-disease patients and their families. Every voice is important. Click here to submit your email address so that you can join NORD’s Volunteers in Public Policy.

Tips for communicating with your Congressional representatives

Contact your Congressional representatives:

Senate
House of Representatives

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Last modified Thursday, March 27, 2008