• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

Volunteers in Public Policy

You can help NORD provide advocacy for rare-disease patients and their families. Every voice is important. Click here to submit your email address so that you can join NORD’s Volunteers in Public Policy.

Tips for communicating with your Congressional representatives

Contact your Congressional representatives:

Senate
House of Representatives