NORD is looking for volunteers who will agree to write their own Senators and Representative up to four times a year about issues that touch the lives of people with rare diseases throughout the United States. Every few months, NORD provides background information on major health issues, clearly outlining arguments for and against each issue. Volunteers are encouraged to form their own views and express them in writing, even if they differ from NORD's, to their Congressional officials. The goal is to call attention to issues that affect the medically disenfranchised people with rare disorders and to encourage elected officials to take action.

If you would like to become involved in the initiative described above, contact Diane Dorman at ddorman@rarediseases.org.