Disease Information from NORD, National Organization for Rare Disorders, Inc.

• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

Senators Grassley, Dodd Introduce Bill to Create Post-market Drug Evaluation Center

NORD has endorsed, and was instrumental in the drafting of, the Food and Drug Administration Safety Act of 2005 (S.930), introduced April 27 by Senators Charles Grassley (R-IA) and Christopher Dodd (D-CT). This bill would create a strong and independent Center for Post-market Drug Evaluation and Research at the FDA, to ensure that drug safety and effectiveness are top priorities for the agency.

Floor statement introducing the bill

Summary of the bill

ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Volunteers in Public Policy

You can help NORD provide advocacy for rare-disease patients and their families. Every voice is important. Click here to submit your email address so that you can join NORD’s Volunteers in Public Policy.

Tips for communicating with your Congressional representatives

Contact your Congressional representatives:

Senate
House of Representatives

Last modified Wednesday, June 10, 2009