News Protecting Patients and Telehealth Access: Over 230 National Organizations Urge Governors Across the Country to Maintain and Expand Licensure Flexibilities Throughout Federal Public Health Emergency
News National Organization for Rare Disorders (NORD) Releases Annual State Report Card, Revealing Trends in Rare Disease Health Care Coverage
News NORD Awards COVID-19 Rapid Response Seed Grants to Rare Disease Patient Organizations Impacted by the Pandemic
Policy Statement NORD and other patient organizations urge CMS to host listening sessions for Inflation Reduction Act implementation
Policy Statement NORD joins 14 patient organizations in a letter to the D.C. City Council’s Committee on Health opposing the exemption of professional employer organizations from vital patient protections
News Research Grants for Rare Disease Research Available from National Organization for Rare Disorders (NORD)
News Fibrous Dysplasia Foundation and NORD Launch Cutting-Edge Study of Fibrous Dysplasia/McCune-Albright Syndrome
Resource Gene Therapy Day 1, Session 1 HCP Session – NORD (National Organization for Rare Disorders) (rarediseases.org)
Resource Gene Therapy Day 2, Session 2 HCP Session – NORD (National Organization for Rare Disorders) (rarediseases.org)