News US News & World Report Features NORD and Dr. Marshall Summar in “What To Do If Your Child Is Diagnosed with a Rare Disease”
News Be a Hero: Help NORD Empower the Rare Disease Community in Washington D.C. and in all 50 States.
News #NORDinthenews – Article on Facts Around Rare Disease Features NORD’s Kristen Angell and Vanessa Boulanger
Policy Statement NORD letter to CA Governor Newsom in support of California AB 347, step therapy reform legislation
Policy Statement NORD letter to CA Governor Newsom in support of California AB 1880, utilization management reform legislation
Policy Statement NORD and 24 organizations send letter to Governor Newsom urging the passage of SB 912
Policy Statement NORD Asks California Governor Gavin Newsom to Sign AB2613 to Establish a Rare Disease Advisory Council
